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NEUROENDOCRIN/CARCINOID CANCER

Carcinoid A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

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Conference Presentations    18 May 2015                                                                                                                              
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Many of these are NEW links although same topic!

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I have been working on a book since January 2011; it is 1/3 memoir, 1/3 genealogy,
AND 1/3 Carcinoid - NETs, plus some cultural history worked in through out the book.
  My editors shall copy edit and assist in layout, cover design and
all sorts of things involved with getting a book published. 
7-1-12 The Book is coming along just great!
When it is published, will let everyone know!


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Video Recordings and Lecture Transcripts of Local and National Patient Carcinoid/NET Conferences

 

Report from 1st International Meeting of Patient Self-Help Groups for patients with neuroendocrine tumors.
Saturday, November 20, 2004, Berlin, Germany 
Journal of Human Cancer

The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome
September 23, 24, 25, 2004, New Orleans, Louisiana 

“This conference represents the cutting edge of medical information dispersal. Getting life saving information to patients with this exceedingly rare disease allows the patient to educate their local doctors rather than the usual paradigm in which physicians are the ones with the knowledge.”  - Dr. Eugene Woltering, M.D. FACS

Lowell Anthony MD FACP  What is New in Somatostatin Analog Therapy.
Associate Professor of Medicine Section of Medical Oncology The Louisiana State University Health Sciences Center New Orleans Louisiana
The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome, Sept. 24, 2004

Barbara Schwerin JD  Cancer and the Law: What You Need to Know
Director, Cancer Legal Resource Center Adjunct Professor of Law Loyola Law School Los Angeles California
The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome, Sept. 24, 2004

Daniel Frey MD FACS  The Role of Surgery, Cytoreduction, Chemoembolization and Liver Transplantation in Carcinoid
Professor of Surgery Vice Chairman  Department of Surgery Director of the Transplant Institute Louisiana State University Health Sciences Center New Orleans
Louisiana The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome, Sept. 25, 2004

Jay Thomas MD  The Role of Hospice in Carcinoid Patients
Assistant Clinical Professor of Medicine Clinical Medical Director of the San Diego Hospice & Palliative Care University of California San Diego California
The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome, Sept. 25, 2004

Leigh Anne Geisler Burns MS, LDN/RD, CNSD  The Role of Diet and Nutrition in Carcinoid Patients
Instructor of Clinical Medicine Department of Medicine Section of Nutrition Louisiana State University Health Sciences Center New Orleans Louisiana
The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome, Sept. 25, 2004

 Interviews on video made at the 2004 New Orleans Carcinoid Conference
 Some of the things discussion are answers to questions commonly asked by newly diagnosed patients
Eugene A. Woltering, MD., Gregory D. Espenan, M.D., Daniel Frey, M.D.
Susan Anderson, Carol-Anne Wilson, Jim Weiveris
Click here for the video interviews NO longer on-line


Carcinoid Symposium 2002, Tampa, Florida, April 12-13, 2002

Coordinated by Dianne Comstock, R.N., M.Ed. and Rhonda Ryan RN
Made possible by an educational grant from Novartis Oncology

Video Recordings and Lecture Transcripts of Local and National Patient Carcinoid/NET Conferences

Carcinoid Wellness Conference, March 9, 2002, Memorial Medical Center, New Orleans, LA

National Carcinoid Symposium 2000 

Sarasota, Florida, May 11, 2000

Coordinated by Dianne Comstock, R.N., M.Ed.
Made possible by an educational grant from Novartis Oncology 
and sponsored by The Wellness Community-Southwest Florida

Video Recordings and Lecture Transcripts of Local and National Patient Carcinoid/NET Conferences
 

Since 1996 --- when I first located others with Carcinoid --- I have answered every email sent to me, although some replies were delayed longer than I liked. I am NO longer able to reply to all e-mails due to the volume and other things going on in my life (all good).  I do love hearing from others, but an unable to reply to all individually.  This web site was 15 years old on April 27, 2012, and my plan is to keep it updated for many years to come.

Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time.  Yes, there is wireless internet and we have tried that a number of places.  But, if I deal with email when we are away from home then it is not a "restful vacation" for me.

PLEASE use the SEARCH capability at the top my pages.  You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.

To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday  10 a.m. to 4 p.m. Eastern Time at  1-888-722-3132 (free) or 1-914-693-1001.   “The information and support line” is staffed by medical professionals.   Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message.  The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org

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CCF -  Serving the carcinoid/NETs  patient and medical community for 
MORE THAN forty years (chartered in 1968)
   “Meets Extensive Standards of America’s Most Experienced Charity Evaluator”
Better Business Bureau

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Last modified: 07/19/15