FIRST Carcinoid Seminar
March 3 & 4, 1999
The idea for the history making FIRST
which was held March 3 and 4, 1999, in Sarasota,
Florida, was conceived and developed by Dianne Comstock, RN,
M.Ed.,a local nurse with carcinoid cancer herself. (See
Dianne's web site FOCUS: Florida Options for Continual Updating Skills
After my return home I sent e-mail to all of my carciniod friends
(both on the support mailing-list -- see above -- and those not on the
support mailing-list), several small parts of that e-mail message are
"And a good time was had by all....." is an old saying, but it
surely applies to the past few days! We have made
history, and it was wonderful - in my book! ...... The
FIRST carcinoid seminar was held last week in Sarasota, FL, March 3 and
4, 1999. It was wonderful! Dr. Lowell Anthony,
of LSU in New Orleans, LA, was a
good speaker with a great deal of information to share, and very
good illustrations with slides. We all wished for more time to
ask him more questions! ....... Seeing so many
ole on-line friends was wonderful! Putting faces to the names we
already knew and meeting new people was exciting! Everyone was so
friendly and enjoyed networking with others that the time passed all
By my count there were attendees from all over North America (from
three places in Canada & from 16 states).
A pre-seminar press release
follows: Patients With
Rare Cancer To Meet In Sarasota
More than 60 patients and caregivers from
throughout the United States and Canada, all with a very rare form of
cancer, will converge upon Sarasota's Wellness Community March 3rd and
4th to participate in a seminar designed to help them learn more about
their illness and its treatment options.
The Wellness Community (of Southwest Florida),
with Novartis Oncology and Sarasota Memorial Hospital, will sponsor the
seminar for patients with carcinoid cancer. The Keynote speaker
will be Dr. Lowell Anthony, an internationally known author and
lecturer in medical oncology and one of the leading experts in the
world on carcinoid cancer.
Carcinoid cancer is a poorly understood
condition that involves the slow growth of tumors that are mid-way
between the classifications of benign and malignant. They have
been called "cancer in slow motion" because even though they have the
potential for being fatal, they tend to grow so slowly that people
afflicted with these tumors often live for many years after diagnosis,
sometimes for a normal lifetime. However the chemicals and
hormones that are made by functioning carcinoid tumors can wreak havoc
on the cardiovascular, gastro-intestinal, pulmonary and other systems
of the body. Resulting problems can often be worse than the
symptoms from the growth of the tumors themselves.
The idea for the Sarasota program which was
the brainchild of a local nurse with carcinoid cancer herself, has
really caught on, particularly through promotion on the internet.
"We found out that many carcinoid patients have a great thirst for more
knowledge about their illness, so much so that they're willing to
travel from all over, at their own expense, to come and hear Dr.
Anthony," explained Dianne Comstock, RN, M.Ed.
Comstock, who volunteered her organizational
skills for this event, regularly takes advantage of the free support
programs and stress reduction presentations offered at The
Wellness Community. "The Wellness Community's mission is to
provide free support to cancer patients and their families, so this
just made perfect sense," she points out.
Dr. Anthony will also speak to local
physicians in separate presentations on new approaches and treatment of
carcinoid cancer. "We're very fortunate to have one of the
world's experts on this illness coming to our facility," said Dr. John
Kleinbaum, a psychologist who supervises The Wellness Community
Kleinbaum will offer a seminar for the
focuses on relaxation and visualization techniques. A yoga class
and the opportunity for social networking round out a program which has
evolved into a retreat for people with carcinoid cancer.
For more information, visit the
Carcinoid Foundation Web site at www.carcinoid.org or call The Wellness
Community at 941-921-5539.
---- end of press
The schedule of events:
Wednesday, March 3, 1999
Location: The Wellness Community, 3900 Clark Rd., Bldg. P-3, Sarasota,
1:30 - 2:30 P.M. Relaxation/Visualization - Techniques for Cancer
Recovery led by John Kleinbaum, Ph.D.
2:30 - 3:00 P.M. Break, with healthy snacks (they were more like
3:00 - 5:55 P.M. "Ask the Doctor" about Carcinoid - with Dr.
Lowell Anthony, M.D.
5:30 - 7:00 P.M. Yoga/Meditation Class led by Linda Lee, BA, LMT
Dr. Anthony addressing a meeting of medical doctors ONLY
Gathering and dinner in a local restaurant
Thursday, March 4, 1999
Location: The Wellness Community (see above)
10:00 - 11:15 A.M. Organizational/Planning Meeting for the next
Carcinoid Seminar in Sarasota, FL
Location: Waldemere Medical Plaza, Papaya Room, 1921 Waldemere
Street, Sarasota, adjacent to Sarasota Memorial Hospital
12:30 - 1:00 P.M. Luncheon
1:00 - 2:30 P.M. Lecture "Carcinoid Syndrome:
Treatment Management, New Approaches" by Dr. Lowell Anthony, M.D.,
Louisiana State University Medical Center, Division of
Hematology/Oncology, New Orleans, LA.*
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