Carcinoid A rare form of "slow-growing" neuroendocrine cancer
Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness
CLICK on any underlined topic below
27 April 2017 this web site was 20 years old, the 1st by a Carcinoid patient!
HOPE for those diagnosed with
April 27, 2017 was the 20th anniversary of this page;
April 23, 2014
I began Dialysis
every evening at home
Would you help to spread the positive word by telling your friends, by gifting the book, and by posting a review for other readers on the www.amazon.com page? We know how valuable a positive recommendation can be.
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CLICK HERE: www.sandostatin.com
Chromogranin A (CgA)
What is Interferon
Treatments for Liver Metastases
Radiological Society of
Medical Glossary from the Carcinoid Cancer Foundation
FAQ (Frequently Asked Questions)
NET Tumor Advisor
The following video interview is no longer available on-line.
Video FAQs of Susan Anderson (done at Carcinoid Conference in New Orleans, Sept. 2004)
Susan: Why did you decide to create your own Web site?
Susan: What is your current state of health?
Susan: How often do you have your carcinoid disease indicators checked?
Two additional questions and Susan's replies on the web page, CLICK HERE
Implanted Venous Access Ports
Information for your medical doctor and other medical professionals from Carcinoid Cancer Foundation
General Information About Carcinoid and Related Neuroendocrine Tumors -- WITH A BIG THANK YOU TO THE Carcinoid Cancer Foundation (CCF). General Information About Carcinoid and Related Neuroendocrine Tumors. This section contains links to websites and full-text and abstract versions of published papers that focus on general information (reviews) of diagnosis, treatment and current research in the field of carcinoid and neuroendocrine tumors.Thank you to the Carcinoid Cancer Foundation, Inc. (CCF), for giving me permission to link directly to this important consensus report below.
"This consensus report gives a detailed description of the use of somatostatin analogs in the management of neuroendocrine tumors of the gastroenteropancreatic system. As background information we have outlined critical aspects of the pathology, the use of tumor markers, a definition of functional and non-functional digestive neuroendocrine tumors, different imaging modalities, surgical considerations, liver embolization and the use of cytotoxic drugs as well as interferon. Included in the report is an overview of somatostatin, somatostatin analogs and its receptor expression in different neuroendocrine tumors. It will also define the binding affinities of different somatostatin analogs to the five different subtypes of somatostatin receptor. We compare the efficacy of octreotide and lanreotide in reducing diarrhea and flushing. Side-effects are described and we provide practical information on somatostatin analog treatment."
1996 --- when I first located others with Carcinoid --- I have answered
every email sent to me, although some replies were delayed longer than I liked.
I am NO longer able to reply to all e-mails due to the volume and other things
going on in my life (all good). I do love hearing from others, but an unable to
reply to all individually.
Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time. Yes, there is wireless internet and we have tried that a number of places. But, if I deal with email when we are away from home then it is not a "restful vacation" for me.
PLEASE use the SEARCH capability at the top my pages. You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.
To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4 p.m. Eastern Time at 1-888-722-3132 (free) or 1-914-693-1001. “The information and support line” is staffed by medical professionals. Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message. The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org
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CCF - Serving the
carcinoid/NETs patient and medical community f
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DISCLAIMER: I am a patient and NOT a medical doctor or health care professional. I share information and links to information that has been helpful to me and that I believe to be correct and good, but I cannot guarantee the accuracy of this information, except for MY stories. I urge you not to rely only on this information but I believe you should discuss your situation and information with your medical doctors and/or other medical professionals. "Sunny" Susan Anderson
Copyright © 1997-2017 Susan L. Anderson. All Rights Reserved.
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