Guest Book 1 and 2

Name:: jennifer
Email:: jwdoc2b@aol.com
Location:: IL 60102
Date:: Sunday November 07, 1999 02:07:31 GMT
Comments:: hi last year i had a r upper lobectomy to remove a 1.5 cm x .3cm x .2cm carcinoid tumor. i have since had intermitent flushing and ct shows cysts in ovaries and two 5 mm nodules in lung- how often soies this cancer reccur, when should someone consider chemo? i am so lost and confused, can you suggest anything?
Age:: 18-29

Name:: Allan Whittingham
Email:: allan@whittingham214.freeserve.co.uk
Web Site:: http://n/a
Location:: Shropshire UK
Date:: Saturday November 06, 1999 19:35:21 GMT
Comments:: A great place for places to look for help THANKS!
Age:: 56-65

Name:: Kim Allen
Email:: KAllen9493@aol.com
Location:: Eaton Rapids MI USA 48827
Date:: Wednesday November 03, 1999 23:42:59 GMT
Comments:: Thanks for all the helpful info. I have been looking for the past two months and finally found your web page. Again thank you so much. KAllen
Age:: 40-45

Name:: Sherri Aldridge
Email:: zherbs4me@aol.com
Location:: Scottsdale AZ USA 85254
Date:: Wednesday November 03, 1999 14:23:39 GMT
Comments:: Susan,
Referred By:: friend e-mailed it to me
Age:: 56-65

Name:: Betsy Ernst-Mullin
Email:: Ernstmulln@aol.com
Web Site:: http://none
Location:: Madison WI US 53711
Date:: Tuesday November 02, 1999 23:27:21 GMT
Comments:: I had a tumor removed and hope it's gone but I'm nervous about where I actually stand.
Referred By:: found by husband
Age:: 40-45

Name:: Pat Furiga
Email:: areukind@hotmail.com
Location:: Mesa AZ USA 85201
Date:: Saturday October 30, 1999 16:49:05 GMT
Comments:: Hi Susan, I think of you daily. Hope your life is going well. Your website is amazing. So much information. I haven't received any email from you in months. Is there anything I can do for you? Pat
Age:: 56-65
Entry:: * * * PRIVATE ENTRY * * *

Name:: Moira
Email:: pityakka@es.co.nz
Location:: Dunedin New Zealand
Date:: Saturday October 30, 1999 10:23:36 GMT
Comments:: Sadly my mother died of carcinoid syndrome in 1990 in England. It affected her liver but it took 10 years before she was diagnosed and it was my sister,a nurse who did some research and took her findings to the doctor. My mother had numerous tests in various hospitals in England and finally saw a visting Amercan specialist in London, sadly it was too late to do anything as her liver was seriously affected by this time. I worry sometimes that carcinoid syndrome is hereditary as I have some strange symptoms which have been put down to peri menopause. Your site has some wonderful information and I have bookmarked it. Take care and look after yourself. Kind regards, Moira
Referred By:: search
Age:: 50-55

Name:: THOMAS BENTON
Email:: BENTONIT@AOL.COM
Web Site:: http://NONE
Location:: MONROE GA USA 30655
Date:: Saturday October 30, 1999 01:08:07 GMT
Comments:: THANKS FOR INFORMATION, I ,TOO WAS MISDIANOIS,BY V.A. DOCTORS 1995.
Referred By:: JUST FOUND IT
Age:: 50-55
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Name:: Pat Talbott
Email:: ptalbeau@aol.com
Location:: Mandeville LA United States 70471
Date:: Thursday October 28, 1999 14:44:17 GMT
Comments:: Love what I've seen so far! Right now I'm going to go back and read more of your carcinoid story, as that is my interest.
Referred By:: Carcinoid.org site
Age:: 66-79
Entry:: * * * PRIVATE ENTRY * * *

Name:: Beverly Higson
Email:: BHigson@excite.com
Location:: Lowell MA USA 01854
Date:: Wednesday October 27, 1999 03:32:58 GMT
Comments:: I found out on October 13, that I have carcinoid tumors in my liver.Im a diabetic, have had a tripple by-pass, now this and Im scared.Thank you for your help.I will be back many times
Referred By:: search
Age:: 50-55

Name:: John Tiger
Email:: royalflush@sanctum.com
Location:: Holiday FL U.S.A. 34690
Date:: Saturday October 23, 1999 20:04:14 GMT
Comments:: Susan--
Referred By:: Susan Anderson
Age:: 66-79

Name:: Marlene J. San Miguel
Email:: mjsm22@aol.com
Location:: Miami FL USA 33143
Date:: Thursday October 21, 1999 22:44:48 GMT
Comments:: Thank you so much for the web page that you wrote. I hope that you are doing better now. I had a carcinoid tumor removed 2 1/2 years ago. Since I still have to go the see different doctors I like to read on it before I visit them. I go with a list of questions everytime I go. Take care and thank you for the information.
Age:: 40-45
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Name:: Michelle
Email:: mlittle@bond.co.uk
Location:: Brighton England BN13
Date:: Thursday October 21, 1999 16:22:24 GMT
Comments:: I am so glad to have found this Web Sight. It Is especially pleasing to hear the stories such as yours who have managed to overcome this terrible disease. I felt I needed to sign your book as I am looking for some information mainly for my grandmother who was diagnosed with the disease over a year ago and told she was living on borrowed time, but she's still here! At the moment she is awaiting some treatment but we all feel that we dont know enough about Neuroendocrine Carcenoid which is what she has.
Referred By:: Found you by looking especially for Carcinoid Syndromes
Age:: 18-29
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Name:: Renee Howard
Email:: RLHRENNIE@aol.com
Location:: Springfield MO 65807
Date:: Thursday October 21, 1999 02:57:57 GMT
Comments:: I have learned a lot from your web-site. I was diagnosed with carcinoid after an emergency appendectomy in late August, 1999. The carcinoid is in my liver with "too many spots to count" according to my doctor. One of the spots in three inches across. We have started the Sandostatin. Do you know if there is a specialist in this area?
Referred By:: Own Research
Age:: 40-45
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Name:: Sandy Cross
Email:: srcpantigo@aol.com
Location:: East Hampton NY USA 11937
Date:: Wednesday October 20, 1999 19:06:07 GMT
Comments:: Thank you for your Webb site. I am positive you have given advice, knowledge, references & hope to more people than you could ever imagine. I also thank Dee for responding to my letter asking for advice. ......Sandy
Referred By:: Dee @ Sale 4 Dee
Age:: 50-55

Name:: Arleen Doan
Email:: ldoanadoan@aol.com
Location:: Fountain Valley CA USA 92708
Date:: Wednesday October 20, 1999 15:47:26 GMT
Comments:: Thank you so much for doing this website. I have been going to doctors fo 7 months who all said I was "depressed" and that nothing was wrong with me. I have now been diagnosed with possible carcinoids in my liver from UCLA med center.
Age:: 56-65
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Name:: Avis N. Brame
Email:: avis822@juno.com
Location:: CA usa 91767
Date:: Wednesday October 20, 1999 15:18:12 GMT
Comments:: I was diagnosed with rectal adenocarcinoma if Feb, 1999 and later diagnosed with a carcinoid tumor. After several tests prior, everything came up negative. I had lost approx. 40 lbs (165-127 lbs.). The tumor was found via a sigmoid. I would like to talk with you more in detail and share my story. My work email is "BRAMEA@MTA.NET", Mon-Fri, 7-4:30 p.m. I look forward to hearing from you in the near future. PS I was truly blessed by your "Carcinoid Story".
Age:: 30-39

Name:: Carol Thompson
Email:: aceem@hotmail.com
Location:: Searcy AR 72143
Date:: Tuesday October 19, 1999 16:40:13 GMT
Comments:: Susan, I'm a three year breast cancer survivor. I'm the one who told you that a port would make your life easier. I lost my best friend to adeno carcinoid after a 19 month fight. Her name was Suzanne Spurrier and she was the director of Harding University Library. Hers started in the appendix and was inoperable in the pancreas. My best wishes to you! I left the support group when she died.
Age:: 46-49
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Name:: sharon levin
Email:: SGL3535@aol.com
Date:: Monday October 18, 1999 20:59:22 GMT
Comments:: dear susan, iam thinking of you and hope your recovery goes well. love, sharon
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Name:: DIANA DOPP
Email:: doppdl@ukonline.co.uk
Location:: APO AE NJ UK 09469
Date:: Saturday October 16, 1999 20:29:12 GMT
Comments:: Thanks for the information. I have had unexplained right side pain for years and the doctors still cannot tell me what it is. I am not sure if I should bring this possibility up or not. I have not lost weight but gained and cannot lose. So maybe I am looking for an answer where there isn't one. But what got me was the red face, neck and shoulders. I get that a lot. Not everyday but often enough to be worrisome. I thought I was going through my change. Again I thank you for your information as I had never heard of this disease before.
Referred By:: cancersurvivors
Age:: 46-49
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Name:: C.J. Britz
Email:: CBBEE@AOL.COM
Location:: KS 66226
Date:: Saturday October 16, 1999 19:15:16 GMT
Comments:: A dear friend of mine was diagnoised with carcinoid cancer in May and they haven't given her a very good prognosis. She is fighting her way through, but the mystery of this disease is puzzling to her. She doesn't have a computer, thought I would look up things for her and mail to her.
Age:: 40-45
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Name:: Sheryl S. Platz
Email:: splatz21@hotmail.com
Location:: Chugiak AK USA 99567
Date:: Thursday October 14, 1999 15:41:57 GMT
Comments:: Hi Susan,
Referred By:: Home Page
Age:: 40-45

Name:: Kerry-Lynne Brown
Email:: defamiglia@juno.com
Location:: Portland OR U.S. 97213
Date:: Thursday October 14, 1999 00:27:45 GMT
Comments:: Thank you for this website.
Age:: 30-39

Name:: Dave Mader
Email:: mader3016@aol.com
Location:: Cedar Falls IA USA 50613
Date:: Wednesday October 13, 1999 23:55:02 GMT
Comments:: Susan, this has got to be one of the most interresting web
Age:: 46-49

Name:: Darcy D. Buland De Vallejos
Email:: dbvcooks@aol.com
Location:: Albuquerque NM US 87111
Date:: Wednesday October 13, 1999 02:04:45 GMT
Comments:: I was diagnosed in Aug.98 when 1\2 of my left lung was removed. The tumor was a-typical and now it appears to have spread to the lynph nodes at my cancer site. I am in constant pain and feel like giving up. You have a great source of information, wish my doctors had seen it years ago. Thank-you.
Referred By:: surf
Age:: 40-45

Name:: Julian Vereker
Email:: jvmbe@compuserve.com
Location:: Salisbury England
Date:: Tuesday October 12, 1999 18:52:10 GMT
Comments:: Diagnosed July '99, to start with the advice was do nothing. 3 months later a CT showed rapid advancement in my liver. Now the recomendation is 5FU continuous infusion.
Referred By:: Carsinoid Foundation
Age:: 50-55

Name:: Beth Blevins
Email:: beth.blevins@gte.net
Location:: zephyrhills FL 33540
Date:: Tuesday October 12, 1999 02:02:44 GMT
Comments:: Susan,
Age:: 56-65

Name:: Bill Sauder
Email:: bdsauder@msn.com
Location:: Phoenix AZ USA 85281
Date:: Sunday October 10, 1999 15:23:30 GMT
Comments:: My wife Eunice has experienced sever abdomen pain for a long time, irregular heart beat, rising blood pressure, lose of energy. Eunice has had lots of tests, catscan, upper and lower GI. I hope to get the doctor to test for Carcinoid Cancer. Thanks for your web site. Read your article in the Arizona Republic. Bill Sauder
Referred By:: Phoenix Republic, news paper
Age:: 66-79

Name:: Bill Sauder
Email:: bdsauder@msn.com
Location:: Phoenix AZ USA 85281
Date:: Sunday October 10, 1999 15:12:40 GMT
Comments:: My wife Eunice is experiencing sever abdomen pain, irregular heart beat, rising blood pressure, lose of energy. Eunice has had lots of tests catscan, upper and lower GI. I hope to get the doctor to test for Carcinoid Cancer.
Referred By:: Phoenix Republic, news paper
Age:: 66-79

Name:: Barbara White c/o Frances White
Email:: Arrows64@aol.com
Location:: Clinton MS USA 39056
Date:: Saturday October 09, 1999 05:09:44 GMT
Comments:: I was surfing and was delighted to find this site. My mother-in-law has recently had surgery for carcinoid tumors, and we have found little information. If you know of meetings, etc. in the South, let me know. I wish you well!
Referred By:: I found you on the web.
Age:: 66-79

Name:: Laura Clark
Email:: laura.clark@asu.edu
Web Site:: http://www.public.asu.edu/~iaclmc
Location:: Tempe AZ USA 85282
Date:: Thursday October 07, 1999 16:29:27 GMT
Comments:: Enjoyed your site -- Laura Clark (aka Pat Mau's daughter :))
Referred By:: Article in Republic
Age:: 30-39

Name:: Jane Alexander
Email:: PlnJane350@aol.com
Web Site:: http://none
Location:: Hueytown AL USA 35023
Date:: Thursday October 07, 1999 10:40:41 GMT
Comments:: Thanks, Susan, for your page. It is most helpful and I plan to read everything as time permits....
Referred By:: found on my own
Age:: 46-49

Name:: jim spillane
Email:: mickey_j@webtv.net
Location:: Phoenix AZ USA 85027
Date:: Tuesday October 05, 1999 23:12:46 GMT
Comments:: Hi Susan and Howard,
Referred By:: You
Age:: 46-49

Name:: MeBette L. Eckhardt
Email:: mebette@hotmail.com
Location:: Greenville NC usa 27858
Date:: Monday October 04, 1999 16:27:36 GMT
Comments:: I was dianosed with Accute lymphocytic Leukemia at the age of 4. I went through chemotherapy and my hair fell out. I feel because of my illness I didn't have a normal or typical childhood but my parent tried there best to make it seem so. I remember one thing in particular I used to do to make my parents laugh. When we would travel in the car I would wait for a car to be along side us and I remove my wig. The passengers in the other car would be awstruck. You have inspired me to add a page to my wed site explain my triumph over cancer. I have been in remission since I was 7, it has been 14 years!
Referred By:: your chain letter
Age:: 18-29
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Name:: Dee Wejzgrowicz
Email:: sale4dee@aol.com
Location:: Chesterfield MO USA 63017
Date:: Monday October 04, 1999 04:15:41 GMT
Comments:: Susan I have known you for years and met you at the Florida conference. I have visited this webpage many times and have emailed you to tell you how great it is but just wanted to put it in your guest book. I still say you are a remarkable woman. I do not know how you did all of this research while fighting carcinoid and breast cancer. You have such a positive attitude. This has helped so many people.
Referred By:: Susan
Age:: 56-65

Name:: Linda Landry
Email:: PLKD11@aol.com
Location:: Woonsocket RI USA 02895
Date:: Sunday October 03, 1999 03:31:47 GMT
Comments:: I have a carcinoid tumor in my left lung and will be having surgery in 2 weeks. I had my biopsy of the tumor and lymph nodes, but I haven't heard any results yet. I am having a sleeve ressection and my left lower lobe removed. Do you know anyone who has had similar surgery that I may talk to (Email)? If you do, please Email me. P.S. I grew up in Tucson.
Age:: 30-39

Name:: Irene Breiland Abdurajak
Email:: i.breiland@c2i.net
Location:: Bergen Norway
Date:: Saturday October 02, 1999 09:56:48 GMT
Comments:: My father has had "Carconid" canser since 1987,he is still alive, but he starts now to get sicker. I have been studie this cancer since he got it.
Age:: 30-39
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Name:: Peggy Taylor
Email:: jopet@dellnet.com
Location:: El Reno OK United States 73036
Date:: Friday October 01, 1999 19:26:37 GMT
Comments:: I was diagnosed in 1991 at the age of 35, have taken chemo
Age:: 40-45

Name:: Ron Cain
Email:: Mimianrym @cs.com
Location:: Portland TX 78374
Date:: Thursday September 30, 1999 03:41:30 GMT
Comments:: Carcinoid in the colon metastasized to the liver. LAR plus two shots a day.Feel much better since I retired from work.
Referred By:: Found on the net
Age:: 50-55

Name:: Glenda Suggett
Email:: CapReload@aol.com
Location:: Munroe Falls OH US 44262
Date:: Tuesday September 28, 1999 12:22:35 GMT
Comments:: Just wanted to sign the book. My wife, Glenda found out last week that she had the cancer in her small intestine. She went thru operation and will start treatment in 5 weeks.I'm siging this for her, Ron ( Husband)
Age:: 56-65

Name:: Robert Raappana
Email:: braappana@home.com
Location:: canada v9e1b4
Date:: Sunday September 26, 1999 19:05:12 GMT
Comments:: Susan, It's been a long time since I visited your homepage, what a great job you have done.
Referred By:: susan anderson
Age:: 40-45

Name:: Bernard Diekhoff
Email:: Bhoff7@aol.com
Location:: Westport IN USA 47283
Date:: Friday September 24, 1999 15:51:31 GMT
Comments:: Dear Susan,
Age:: 50-55

Name:: Linda Clark
Email:: cricket1@brazoria.net
Location:: Brazoria TX USA 77422
Date:: Thursday September 23, 1999 20:07:58 GMT
Comments:: I just had surgery Sept. 13th and was told that I had carcinoid tumor on my small bowel. Part of my small bowel was removed and I am doing well. Looking for information on this condition. Enjoyed your story.
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Name:: JACKIE FEAZEL
Email:: rcjfeazel@aol.com
Location:: Shreveport LA 71108
Date:: Wednesday September 22, 1999 23:55:19 GMT
Comments:: I found your webpage to be very informative and helpful. Thanks for all the research, I have learned more about my disease from you than from the doctors. I am under the care of Dr. Lowell Anthony (New Orleans) and he is very supportive and kind. Keep up the good work that you are doing.
Referred By:: Search Engine
Age:: 66-79

Name:: Marilyn Atwood
Email:: marilyn@fastwave.net
Location:: San Diego CA USA 92123
Date:: Wednesday September 22, 1999 23:51:03 GMT
Comments:: Hi Susan: I have a friend who asked me to look on the internet for Metastatic Carcinoid Syndrome. She wants to know more about the symptoms and treatment, but I can't find anything specific. Do you know where I can find it?
Referred By:: found on internet
Age:: 56-65
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Name:: Jane Alexander
Email:: PlnJane350@aol.com
Location:: Hueytown AL USA 35023
Date:: Wednesday September 22, 1999 06:18:20 GMT
Comments:: Doc trying to rule in or out carcinoid..severe abdominal pain and bright red flushing (face, hands)---doc took a lot of blood today,consulted an endocrinologist....now with next spell I am to collect a 24-hour urine....Got any comments or suggestions? How can I find THE best specialist in the Birmingham, AL area? thanks....so many questions?!?!?!?!? Jane
Age:: 46-49
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Name:: Charles H Barney
Email:: CbarneyRPH@aol.com
Web Site:: http://www.roswellpark.org
Location:: East Amherst NY USA 14051
Date:: Wednesday September 22, 1999 05:58:37 GMT
Comments:: Dear Ms. Anderson-
Referred By:: Link from The Carcinoid Cancer Foundation
Age:: 46-49

Name:: Patti Jo Boehm
Email:: PJBome@aol.com
Location:: Homewood IL
Date:: Wednesday September 22, 1999 04:40:08 GMT
Comments:: Thank you for all of the information
Age:: 30-39

Name:: scherell hurst
Email:: sjmh@aol.com
Web Site:: http://world wide web
Location:: cedarville AR 72932
Date:: Wednesday September 22, 1999 02:10:29 GMT
Comments:: i was just diagnosed with carcinoid tumor of duodenum and am now having the octereo can starting today and the next 2 days then will do the 5hiaa test. have already had ct and all showed normal. im trying to learn more about this. i am very luck because my doctor found this so quick and is starting these tests quickly. i really enjoyed reading your story. i'll keep you in my prayers. any suggestions would be appreciated. i've got alot to learn.
Referred By:: just diagnosed with carcinoid tumor and looking for info
Age:: 30-39

Name:: Pat
Email:: GranEPat@aol.com
Location:: Salem VA United States 24153
Date:: Wednesday September 22, 1999 00:07:52 GMT
Comments:: Thanks for all your hard work on "carcinoid". My husband DX. in June with small intestine surgery in July. Doing fine now. To have 3 mo.(5-HIAA) test and colonoscopy every 6 mo. Found on routine colonoscopy by gastroenterologist bright enough to check further into small bowel to biopsy inflammed area. Thank goodness. Also spread to lymph nodes near area. These removed as well. Took out about 20 inches of small bowel. Oncologist tells us "NOT TO WORRY". He said it so many time on last visit that I think maybe we should worry. We have most positive attitude but I sure would like to have as much information as I can find. Appreciate your hard work and hope that you are doing fine. May God continue to Bless You. Maybe we can talk again.
Referred By:: self
Age:: 56-65
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Name:: Neil Brady
Email:: neilbrady@hotmail.com
Location:: Henderson NV USA 89014
Date:: Monday September 20, 1999 23:23:55 GMT
Comments:: My son age 26 has been diagnosed with Carcinoid Cancer and just had 8" of small intestine removed . There were two carcinoids, one large enough to cause a blockage. He was diagnosed 4 years ago after having severe abdominal pains, and it was found that he had many on his liver. The doctors have been un-able to locate the primary tumor.
Referred By:: Search Engine
Age:: 50-55

Name:: Angela Buttrum
Email:: abuttrum@aol.com
Location:: Nashville TN usa 37013
Date:: Sunday September 19, 1999 17:51:03 GMT
Comments:: Thanks to your web page I've learned more about carcinoid cancer than I have since being diagnosed is august 99.
Age:: 30-39

Name:: sheron petesch
Email:: jspete@digisys.com
Location:: Kalispell MT USA 59904
Date:: Sunday September 19, 1999 04:31:33 GMT
Comments:: Your story is very similar to mine.
Age:: 56-65

Name:: Renee Howard
Email:: RLHRENNIE@aol.com
Location:: Springfield MO 65807
Date:: Sunday September 19, 1999 03:23:56 GMT
Comments:: I was recently diagnosed with carcinoid found during an emergency appendectomy. It has metastisized to the liver, approximately 10-12 spots could be seen during surgery. I am now awaiting results of the CT Scan and the 24-hour urine testing. I have been trying to read to get as much info as possible. This is all very new to me. I am not even aware of how knowledgable my oncologist is in Carcinoid. I have a lot of research to do, but am currently awaiting original test results.
Age:: 40-45
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Name:: DORINDA VINSON
Email:: dorindavinson@hotmail.com
Location:: PEARISBURG VA USA 24134
Date:: Sunday September 19, 1999 02:36:05 GMT
Comments:: MY GRANDMOTHER WAS DIAGNOSED WITH THIS TYPE OF CANCER 12 YRS AGO-NOW EVERY FAMILY MEMBER SEEMS LIKE SHE STILL WILL
Referred By:: myself
Age:: 30-39

Name:: Beth O'Reilley
Email:: Boreilley@aol.com
Location:: Devon PA usa 19333
Date:: Saturday September 18, 1999 15:41:59 GMT
Comments:: I too have been having RLQ pain. I have had my appendix removed (completely abscessed and necrotic). After having the appendix removed I started with fevers, fatigue and increased pain. CT showed cysts-felt to be ovarian, ultrasound was normal. Finally they decided to do an arteriogram. The arteriogram showed a 2x4 cm lesion along the superior mesenteric artery-dx suggestions were lymphoma or carcinoid tumor. None of the docs seem to know where to go from here because the CT was relatively normal. I found your story interesting because I am feeling a lot of the same frustration you did while trying to find a diagnosis and get treatment. I am having trouble even getting the docs to give more pain medication stronger than naprosyn. Keep up the good work with the web site.
Age:: 30-39
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Name:: Sandra Parrish
Email:: UFPARRISH1@AOL.COM
Location:: Winter Garden FL USA 34787
Date:: Saturday September 18, 1999 05:12:00 GMT
Comments:: Thank you for your informative contrabution to those of us fighting this dreaded desease. God bless you in your personal battle.
Age:: 50-55

Name:: V. Renato Burkhardt
Email:: galaxy1@pipeline.com
Location:: Boca Raton FL USA 33433
Date:: Wednesday September 15, 1999 17:07:30 GMT
Comments:: A few days ago a Doctor told me that I had 2400 CEA's in my
Age:: 56-65

Name:: Sherrie Jarrett
Email:: slj16dlj1@juno.com
Location:: Sacramento CA U.S. 95825
Date:: Tuesday September 14, 1999 05:40:28 GMT
Comments:: Hi Susan! Just discovered your home page tonight. What a blessing!!! I have been DESPERATELY trying to find SOMEONE, ANYONE who also has had sweats with carcinoid. They can't find any tumor and yet I have been diagnosised with carcinoid syndrome and have been on Sandostatin for about 2 years. Have you known or heard of ANYONE who has all the symptoms of carcinoid syndrome but they couldn't find the tumor???
Referred By:: Self
Age:: 50-55
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Name:: Gillian Price
Email:: gmp@aber.ac.uk
Date:: Monday September 13, 1999 10:47:09 GMT
Comments:: Best wishes to you from Aberystwyth, Wales, UK. I am about to start a Ph.D. in information management/multimedia looking into the situation of paediatric cancer patients in here in Wales - and joined some cancer mailing lists in the USA to see how you do things as we are _way_ behind. I have read your story and some parts made me angry for you (in the nicest possible way). I wholly believe that we must maintain a positive and balanced attitude to every challenge in life - and believe you have cracked it!! :)
Age:: 50-55
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Name:: Jo Beth Crawford
Email:: JCraw6414@aol.com
Location:: Tempe AZ USA 85283
Date:: Sunday September 12, 1999 00:24:52 GMT
Comments:: I was diagnosed with breast cancer in January, 1998 and underwent a lumptectomy, chemotherapy and radiation. This week I was told that I had a carcinoid tumor and am just beginning to learn about it. I hope that I can keep the same positive attitude that you have, but there are days when it's pretty scary. I'll learn more about my condition over the next few days, as I have several tests to schedule. I have not shared this latest diagnosis with my mother. We just lost my dad and I didn't want to worry her until I have more knowledge. However, my children know and have been great support. Thanks for your story.
Referred By:: Myself
Age:: 46-49
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Name:: Tracey Alberts
Email:: Talb588474@aol.com
Location:: Schenectady NY usa 12308
Date:: Saturday September 11, 1999 16:07:23 GMT
Comments:: My mother has carcinoid, and reading your story is very uplifting, thank-you.
Age:: 30-39

Name:: Doreen Jaskela
Email:: djaskela@home.com
Location:: Kelowna, BC Canada
Date:: Saturday September 11, 1999 05:37:20 GMT
Comments:: Very interested in your history - I am on the breast cancer list as I have stage 1V breast to bone cancer. Thanks for all the information. Regards Doreen

Name:: Jeanette McJunkin
Email:: Katznana@aol.com
Location:: Lucedale MS United States 39452
Date:: Thursday September 09, 1999 14:18:18 GMT
Comments:: I found your story very informative. You should be proud of the research you have done, I am so new at this. I don't even know about the tests, terminology, etc. yet. I am sure it won't be long until I am familiar with all of it. Thank you for taking the time and the effort to put all this together. I am so hungry for information about this cancer, I want to learn all I can. Thank you.
Age:: 40-45

Name:: Nancy Peacock
Email:: NPEACO1120@AOL.COM
Location:: Davenport IA USA 52803
Date:: Wednesday September 08, 1999 01:57:16 GMT
Comments:: Susan, thank you for all the work you have done and continue to do. I so hope to get to a seminar so I can meet you. For readers..I had my first carcinoid in 1983 and am still working 40 hours per week...just recently on LAR20 and really doing pretty good except for tiredness. Have mets to the liver with a lot of involvement, but no other treatments planned at this time. THERE IS HOPE!!! I have had this disease now for 16 years that we know of so please keep faith that you will keep making yourself going and don't dwell on the negative. That's what I try to do. I also find great comfort in beautiful music. Good health to all. Thank you Susan!!!
Referred By:: Just Visiting..it's been a long time!
Age:: 50-55

Name:: Roger Samuels
Email:: SoleDaddi0@AOL.COM
Web Site:: http://S.L>Anderson@worldnet
Location:: Hagerstown MD USA 21742
Date:: Monday September 06, 1999 15:53:34 GMT
Comments:: Wonderful informative site you have here. It definitely is a help in cancer awareness for all who visit. I am just learning of this dreadful disease. God bless you for passing this knowledge to others.
Age:: 46-49

Name:: Joyce A. Dugan
Email:: jdugan@mb.sympatico.ca
Location:: Roblin Canada ROL 1PO
Date:: Monday September 06, 1999 15:52:42 GMT
Comments:: I was diagnosed with Neuroendocrine Carcinoid Cancer May 12,99
Age:: 40-45

Name:: ELIZABETH A COLLINS
Email:: elucine@aol.com
Location:: Miami FL USA 33176
Date:: Sunday September 05, 1999 17:04:10 GMT
Comments:: Found you from exploring the internet to become informed about carcinoid(12mm) tumor removed from lungs August 5,1999.My gastrointestinal problems though less devere than yours parallel your recitation. Thanks
Referred By:: self
Age:: 66-79

Name:: Jeff Smith
Email:: shaliscar@mpx.com.au
Location:: Belmont North Australia 2280
Date:: Saturday September 04, 1999 03:37:24 GMT
Comments:: This is just and advice that I have had a change of e-mail address. Please delete the old one (jeff.smith@hunterlink.net.au). I hope you are feeling better. Looking forward to Sandostation LAR being available in Australia soon.
Age:: 46-49
Entry:: * * * PRIVATE ENTRY * * *

Name:: Molly
Email:: Snerk218@aol.com
Location:: CT USA 06492
Date:: Wednesday September 01, 1999 01:25:56 GMT
Comments:: If anybody has any information on the liver kind of carcinoid syndrome please e-mail me. My grandmother may it and I would like to find out all of the information I can. Thank you very much!
Age:: Under 18

Name:: Nik Doshi
Email:: nikunj_d@hotmail.com
Location:: Kirkland WA USA 98034
Date:: Friday August 27, 1999 18:02:08 GMT
Comments:: Dear Susan,
Referred By:: Internet Search Engine
Age:: 18-29

Name:: Thom BELL
Email:: thom_bell@bc.sympatico.ca
Location:: Kamloops CANADA
Date:: Monday August 23, 1999 17:37:31 GMT
Comments:: I'm looking for some vitimins to take during radiation of my carcinoid tumor in my lung.Any body have sugestions.
Age:: 40-45

Name:: Thom BELL
Email:: thom_bell@bc.sympatico.ca
Location:: Kamloops CANADA
Date:: Monday August 23, 1999 17:26:25 GMT
Comments:: Thank you for the page .Just advised myself so am looking for info.
Age:: 40-45

Name:: laurie Gindler
Email:: bgindler@cvtv.net
Web Site:: http://none
Location:: Hallettsville TX USA 77964
Date:: Sunday August 22, 1999 23:23:26 GMT
Comments:: Your story was very informative. We found Dr. Warner two weeks after my diagnosis with Carcinoid Cancer...a lucky hit. He referred me to Dr. Larry Kvols of UNM Health Science Center in Albuquerque, recently joined the Moffitt Cancer Research and Treatment Group in Tampa, Fla. Surgery for removal of part of lower intestine, colon, and liver was done at St. Joseph Hospital by Dr Peter deIpolyi in May of 1998. Post treatment two daily Sandostatin Injections until May 1999 when I started LAR. Will see Dr. Kvols in Tampa in November. Concur with your opinion of Dr. Warner and the Carcinoid Foundation. Laurie G.
Referred By:: Carcinoid Cancer Online Support group
Age:: 56-65
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Name:: Carol A. Snyder
Email:: csnyder@oasistech.net
Web Site:: http://None
Location:: Winter Haven FL U.S.A. 33881
Date:: Saturday August 21, 1999 16:00:04 GMT
Comments:: I am trying to find out some information on the treatment of Neuro-endocrine cancer for my cousin Ruby Burkett who has been dealing with it for 6 years. She is about at the end of her rope emotionally and I just thought that maybe I could find something to encourage her or maybe even something new about treatment for it. She is currently being treated for it at the Moffit Cancer Center in Tampa, Florida under the care of Lodovicco Balducci, her oncologist. I read your story and it's very different than her's but I wish she could have your outlook! Thank you for writing it all down, it was very inspiring to me.
Referred By:: Found you by internet request on neuro-endocrine cancer.
Age:: 56-65
Entry:: * * * PRIVATE ENTRY * * *

Name:: PAM COLE
Email:: PCEC@ZOOMNET.NET
Location:: PORTSMOUTH OH USA 45662
Date:: Wednesday August 18, 1999 22:07:47 GMT
Comments:: I had two carcinoid tumors removed from my small bowel in
Age:: 46-49

Name:: maria pellegrino
Email:: mvpell3@aol.com
Location:: raritan NJ usa 08869
Date:: Wednesday August 18, 1999 02:28:03 GMT
Comments:: my mom 55 diagnosed w/carcinoid tumor in small intestine & nearby lymph nodes . should we go to saltz (sloan) or warner (mount sinai) is it true warner doesnt accept insurance
Age:: 30-39

Name:: Pat Goldstein
Email:: patronhp@aol.com
Web Site:: http://aol
Location:: Highland Park NJ USA 08904
Date:: Saturday August 14, 1999 04:51:04 GMT
Comments:: What a marvelous website you have! After reading your story
Referred By:: my own research

Name:: Barbara J. Day
Email:: bjday@mindspring.com
Location:: Flowery Branch GA Hall 30542
Date:: Thursday August 12, 1999 18:14:14 GMT
Comments:: Have just found your website and am thrilled at what all I
Age:: 50-55

Name:: Cathy Divilly
Email:: cdivilly@beckman.com
Location:: Galway Ireland
Date:: Wednesday August 11, 1999 12:59:16 GMT
Comments:: Thank you for your support. You are an amazing, wonderful woman and you have helped me so much through your home page.
Age:: 46-49
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Name:: Malinda
Email:: halogirl@netscape.net
Location:: Overland Park KS usa 66223
Date:: Wednesday August 11, 1999 06:12:30 GMT
Comments:: What a remarkable woman you are. I found your page by researching carcinoid my dr. told me today I have a carcinoid tumor in my stomach but it is not cancer. But I have to have surgery to remove it. God Bless to you and prayers coming your way.
Age:: 18-29

Name:: Shirley McDermott
Email:: tierraman@worldnet.att.net
Location:: Naples FL 34108
Date:: Tuesday August 10, 1999 14:24:55 GMT
Comments:: Susan, I read "your story" after I sent you the E-mail message. Thanks for all the info in "your Story" which is very similar to mine. Your experince with interferon was very helpful. I was sorry to hear about the breast cancer but glad to see you are taking it in stride, I guess we become hardened by the carcinoid trial we have been through. Keep up the fight our thoughts and prayers are with you.>
Age:: 56-65
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Name:: Sande Riggan
Email:: riggs7@intop.net
Web Site:: http://susans home page
Location:: smithville MS 38870
Date:: Saturday August 07, 1999 23:53:15 GMT
Comments:: i am just trying to find answers to my ?????'s just found that my mom has gastric carcinoids dont even know the extent of it yet, the drs havent even told her what it is. so ilooked it up on the net, it dont look good.
Age:: 18-29

Name:: Darla Coon
Email:: darla@sanishield.com
Web Site:: http://sanishield.com
Location:: Oak Ridge LA USA 71264
Date:: Saturday August 07, 1999 03:45:10 GMT
Comments:: Thank you for taking the time to share. It is appreciated.
Age:: 40-45

Name:: Mary Brandes
Email:: mbrandes@avalon.net
Location:: Iowa City IA USA 52246
Date:: Monday August 02, 1999 21:55:33 GMT
Comments:: Thank you for finding and sharing so much information, and for being so sunny and upbeat.
Age:: 66-79

Name:: Marie
Email:: dollvan@worldnet.att.net
Location:: CA
Date:: Sunday August 01, 1999 03:07:23 GMT
Comments:: I found your story very interesting! My carcinoid was discovered on my liver during gallbladder surgery in December 1996. Another surgery in March 1997 and the primary source was found in the ilium section of my small intestine. My liver had too much metatasis to be removed. So, we are just watching it. So far my liver function is normal as well as my blood tests. I do have diarrhea I never had prior and don't know if it is a result of intestinal surgery or carcinoid. So far I have had no treatment at all except for the surgery.
Age:: 40-45
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Name:: Mrs. Signe E. DeSautel
Email:: timrdez@hotmail.com
Location:: Grafton ND USA 58237
Date:: Saturday July 31, 1999 23:02:06 GMT
Comments:: I have just completed testing at Rochester Mayo Clinic and they removed a 3cm polyp. The diagnosis: Duodenum, bulb, endoscopic biopsy: Carcinoid (grade 1 neuroendocrine). Comment: In immunoperoxidase stains performed on paraffin-embedded tissue sections, the neoplastic cells stained strongly and diffusely for chromogranin and focally for gastrin. I will be returning in 3 days for more testing. I appreciate your NetPage for the information on Carcinoid. If you know of another site or an area on your site to go to for information about my specific diagnosis and comment, I would appreciate hearing from you. Thanks so much!! Signe
Age:: 40-45
Entry:: * * * PRIVATE ENTRY * * *

Name:: Janice Henderson
Email:: rahenderson@uswest.net
Location:: Boise ID 83713
Date:: Friday July 30, 1999 04:10:45 GMT
Comments:: I have been struggling with symptoms for years. Dr.'s have found high levels of somatostatin and are suspecting carcinoid. Doctors here are very uninformed about it and I am trying to learn more. One symptom which I suffer from in addition to fatigue and flushing is severe itching and burning over my entire body. Have you heard of this being a symptom? No one has been able to determine the cause or provide any relief including doctors at Vanderbuilt University and Mayo Clinic in 1993-94. Any help or advice you could give would be appreciated. My address is 10850 W. Treeline Ct., Boise, ID 83713. Phone # 208-376-7530
Referred By:: Found on internet
Age:: 50-55

Name:: Lesley M. Klein
Email:: lmklein2@engr.wisc.edu
Web Site:: http://none
Location:: Madison WI USA 53711
Date:: Thursday July 29, 1999 16:49:15 GMT
Comments:: I enjoyed your web page, very informative. I had a hard time finding info on Goblet Cell Carcinoid until finding Carcinoid.org's web site. I will know more about my condition after an appointment tomorrow. I am recovering from a hysterectomy and appendectomy. Through tests the goblet cell was found in my appendix.
Referred By:: self
Age:: 50-55

Name:: Peg
Email:: sxw@Bellatlantic.net
Location:: PA USA 19047
Date:: Wednesday July 28, 1999 01:33:58 GMT
Comments:: My husband was diagnosed with carcinoid syndrome 1 year ago. I very much enjoyed your story, and your optomistic outlook. I try to remind my husband that he's living with carcinoid not dying with it. Maybe reading your article will uplift his spirits. Thank you for your strength.
Age:: 50-55
Entry:: * * * PRIVATE ENTRY * * *

Name:: L. J. Bryan
Email:: ljbryan@web-access.net
Web Site:: http://www.web-access.net/~ljbryan/
Location:: TX USA
Date:: Tuesday July 27, 1999 09:30:37 GMT
Comments:: You have a great Website and I enjoyed visiting it. Please visit my Websites
Referred By:: an Email
Age:: 56-65

Name:: Margaret
Email:: brian @ cyclefit.freeserve.co.uk
Web Site:: http://freeserve
Location:: elton england ch2 4qd
Date:: Saturday July 24, 1999 00:12:10 GMT
Comments:: thank you for info, friend aged 35 recently diagnosed neuro endocrine cancer, treatment not working at present, very hopeful & positive, prayers & best wishes to you.
Referred By:: myself
Age:: 40-45

Name:: Nelda K. Fritcher
Email:: bfritcher@AOL.com
Location:: Granbury TX USA 76049
Date:: Wednesday July 21, 1999 19:46:33 GMT
Comments:: Susan, This is truly a remarkable page. I read it when I was first diagnosed with carcinoid. Now that I am not so sure what was going on again I decided to read your updated homepage. Thanks so much for your wonderful attitude which inspires so many of us when we get tired of fighting this disease. You truly give me a lift.
Age:: 56-65
Entry:: * * * PRIVATE ENTRY * * *

Name:: Heather Kozak
Email:: heather@ductape.net
Web Site:: http://Plaza Heather
Location:: Borlänge Sweden 78453
Date:: Wednesday July 21, 1999 16:39:26 GMT
Comments:: Nice informational website!!! :-) Thank you for visiting mine!
Referred By:: You! :-)
Age:: 18-29

Name:: Ladypin
Email:: ladypin@pa.net
Web Site:: http://www.geocities.com/SouthBeach/Sands/1931/
Location:: Hanover PA USA 17331
Date:: Monday July 19, 1999 18:59:08 GMT
Comments:: Thank you for letting me enjoy your page, I found it to be very interesting and useful. I bookmarked it so I can check it out more later. Ladypin.<CENTER>Please Visit</CENTER>
Age:: 56-65

Name:: Gussie M.Hopkins
Email:: Gussie.Hopkins@bmdo.osd.mil
Location:: Upper Marlboro MD USA 20774-1482
Date:: Monday July 19, 1999 16:17:39 GMT
Comments:: Very Interesting and important information--Thank you
Referred By:: Sharon Wise
Age:: 56-65
Entry:: * * * PRIVATE ENTRY * * *

Name:: Kris Nicholson
Email:: KANski127@aol.com
Web Site:: http://None
Location:: Rochester Hills MI USA 48306
Date:: Sunday July 18, 1999 01:22:41 GMT
Comments:: Good site for carcinoid info.
Referred By:: Myself
Age:: 40-45

Name:: Sandra Mount
Email:: SandyM43@aol.com
Location:: Mine Hill NJ USA 07803
Date:: Saturday July 17, 1999 01:05:28 GMT
Comments:: I was just looking around!
Referred By:: Myself
Age:: 40-45

Name:: Melinda Clark
Email:: cruz@futuresouth.com
Location:: Columbus MS USA 39702
Date:: Saturday July 17, 1999 00:09:20 GMT
Comments:: Enjoyed your page!! I am an RN and I have only seen 2 carcinoid tumors in the 8 years that I have been nursing. I was searching the net looking for information on chemoembolization for another nurse and came across your page. I wish you the best!
Referred By:: n/a
Age:: 30-39

Name:: Jett Cheek
Email:: jett@musician.org
Location:: Denton TX 76201
Date:: Friday July 16, 1999 19:13:26 GMT
Comments:: I'll get Nancy in touch with you soon. She has her own email address, but she can only access it at work (she's a school teacher and out for the summer).
Referred By:: Ruth Felderhoff
Age:: 30-39

Name:: Pippa Webb-Briscoe
Email:: wicpwb@cadvision.com
Location:: Calgary, Alberta Canada T3E 6H1
Date:: Thursday March 11, 1999 21:14:31 GMT
Comments:: My sister has just been diagnosed with carcinoid tumours on her liver. Just trying to find out more information. Thanks.
Referred By:: self
Age:: 30-39

Name:: Betty Caporossi
Email:: bettyjc@prodigy.net
Web Site:: http://N/A
Location:: Titusville FL USA 32796
Date:: Sunday March 07, 1999 23:27:09 GMT
Comments:: My Son met you at the symposium in Sarasota last week and suggested I get in touch with you. I was hospitalized for small bowel obstruction and they found the carcinoid problem, so I was not able to attend the symposium with him. Perhaps we could meet over the computer?
Referred By:: Son
Age:: 56-65

Name:: Carol A. White
Email:: Bcsuntan@aol.com
Location:: North Haledon NJ USA 07508
Date:: Sunday March 07, 1999 16:33:55 GMT
Comments:: Thank you for writing such an indepth story.
Age:: 40-45
Entry:: * * * PRIVATE ENTRY * * *

Name:: Karen Bletscher
Email:: wkb@azstarnet.com
Location:: Tucson AZ USA 85718
Date:: Sunday March 07, 1999 06:33:15 GMT
Comments:: Hi,
Referred By:: Found you by web search
Age:: 50-55
Entry:: * * * PRIVATE ENTRY * * *

Name:: Paul McCarty
Email:: mccarty@lcc.net
Location:: Pollok TX USA 75969
Date:: Saturday March 06, 1999 22:48:29 GMT
Comments:: My wife has recently been diagnosised with a carcinoid cancer in her sigmoid colon. We are scheduled to have the OcteroScan in about 10 days. I have not had a chance to look at all of the information available on your web site. But, I intend to read more. All of this for us has come about quite quickly. I hope we have the success you have. Thank you for developing this web site and having such informative information.
Referred By:: found you through the results of a search engine
Age:: 46-49

Name:: Tarja Björklund
Email:: tarja.bjorklund@swipnet.se
Location:: Eskilstuna Sweden
Date:: Saturday March 06, 1999 11:28:07 GMT
Comments:: Thank you for your homepage. You can find more information about carcionides at carpa(see my refference).I have been treated at Uppsala,the world center for treatment for carcionid patients,they have given me lots of information, they have great doctors there.
Referred By:: http://www-pp.hogia.net/carpa/
Age:: 30-39

Name:: Vicki Bradshaw
Email:: vicki4ou@aol.com
Location:: Oklahoma City OK usa 73170
Date:: Friday March 05, 1999 00:38:11 GMT
Comments:: My husband has carcinoid syndrom with a very large tumor in his liver with other smaller tumors also there. Just looking at the web site for more information. Thanks
Referred By:: self
Age:: 40-45

Name:: Randi Bergey
Email:: brjebergey@aol.com
Location:: Arlington Heights IL USA 60004
Date:: Thursday March 04, 1999 14:04:36 GMT
Comments:: Hi Susan, awesome web page. First read it last summer, my you have been busy!! FYI, Illinois is spelled incorrectly in your state list.Sorry, I was a teacher and we always have our red pencils sharpened :).Hope you are feeling well and have fun in Florida. Randi
Referred By:: Carcinoid Cancer Foundation
Age:: 40-45
Entry:: * * * PRIVATE ENTRY * * *

Name:: megan bobola
Email:: mbobola@worldnet.att.net
Location:: faihaven MA us 02719
Date:: Tuesday March 02, 1999 17:47:34 GMT
Comments:: please keep me posted w/the lates breakthroughs and info dealing w/this type of cancer as they come up please
Age:: 18-29

Name:: Loyd J. Yarbrough
Email:: l.yarbrough@worldnet.att.net
Web Site:: http://none
Location:: Byhalia MS USA 38611
Date:: Monday March 01, 1999 05:55:26 GMT
Comments:: My wife and I enjoyed your story on your web page. I was diagnosed SEP 1991 and my Doctor says I am a miracle each time I see him, which is very encouraging.
Referred By:: none
Age:: 50-55

Name:: Ellen Lyle
Email:: elyle@fbw.com
Location:: Vienna VA USA 22182
Date:: Saturday February 27, 1999 14:20:30 GMT
Comments:: I have looked at your site before and I thought I had previously signed your guestbook. My husband is 48 and was diagnosed this pass summer with carcinoid. We have two children, 6 & 9. He has had terrible reaction to Sandostatin. Currently, he is undergoing 5-FU Leucovorin once a week but his pain is incredible. I have been searching for months to communicate with anyone else who is in the same situation. Thanks for being there. I am going to start e-mail with some of the other guests. Please e-mail us. We all need to support each other!
Referred By:: Susan's Carcinoid Story
Age:: 40-45

Name:: Patrick W. Spires
Email:: pspires@fnbweb.com
Location:: Germantown OH USA 45327
Date:: Friday February 26, 1999 17:55:09 GMT
Comments:: Thank You for the information and I hope you continue to improve.
Referred By:: NCSG Home Page
Age:: 30-39

Name:: Carrie Johnson
Email:: Camp878904@aol.com
Web Site:: http://none
Location:: waterloo IA USA 50701
Date:: Thursday February 25, 1999 06:13:07 GMT
Comments:: Luved your page, thanks for being such a big part of the carcioid list serv. You look really good in the pictures as does your faithful friend (cat) & your hubby is nice looking too. Take Care U, Sending Light to U, Regards,
Referred By:: you
Age:: 30-39

Name:: Janice Fahey
Email:: jfw@cts.com
Location:: San Diego CA
Date:: Thursday February 25, 1999 03:34:28 GMT
Comments:: Hi Susan, Just stopping by to check out your updates. Maybe we could do the Carcinoid Seminar in San Diego next time(convenient for me). Take care, Janice
Age:: 46-49

Name:: eric feldes
Email:: cefeldes@together.net
Location:: s. burlington VT usa 05403
Date:: Thursday February 25, 1999 01:39:18 GMT
Comments:: i've been living with carcinoid of the thymus gland for over 6 years. my doctors are at the end. what are others doing? has any chemotherapy helped? what about alternatives? has anyone been cured of carcinoid?
Referred By:: carcinoid chat group
Age:: 18-29

Name:: Craig Culpepper
Email:: ashleyc@peachnet.campuscwix.net
Location:: Ellerslie GA US 31807
Date:: Tuesday February 23, 1999 15:29:07 GMT
Comments:: I am glad to find your web site. There is so much information.
Age:: 50-55

Name:: j. green
Email:: green4@sympatico.on.ca
Location:: Toronto Canada
Date:: Sunday February 21, 1999 20:19:37 GMT
Comments:: Great web sit - really have learned alot! Thank you very very much.
Referred By:: no one
Entry:: * * * PRIVATE ENTRY * * *

Name:: Sharon Sagaser
Email:: knowrole@webtv.net
Location:: New Cambria MO usa 63558
Date:: Saturday February 20, 1999 22:54:31 GMT
Comments:: This is a great site. My father=in=law was just diagnosed with a carcinoid tumor and I am researching all I can on that. Thanks Sharon
Age:: 40-45

Name:: Lisa Copen
Email:: rest@ixpres.com
Web Site:: http://www.ixpres.com/jlcopen
Location:: san diego CA usa
Date:: Wednesday February 17, 1999 18:22:50 GMT
Comments:: Enjoyed browsing your site. Hope you will drop by ours, a ministry for people who live with chronic illness or pain.
Age:: 30-39

Name:: Carolyn Bouchard
Email:: srb@ime.net
Location:: millinocket ME usa 04462
Date:: Tuesday February 16, 1999 18:34:31 GMT
Comments:: I was diagnosed with Carcinoid in September 1995. I had three small tumors removed in my small intestine and one tumor removed in a lymph node. Two of seven lymph nodes tested were positive. I am monitored very closely with quarterly serum serotonin tests and yearly CT and Octreotide scans. I drank Essiac tea for over two years. Look up Eassiac on the internet for more info.
Referred By:: searched net about carcinoid
Age:: 40-45
Entry:: * * * PRIVATE ENTRY * * *

Name:: Marilyn Neitzel
Email:: mneitzel@globaldialog.com
Location:: Watertown WI 53098
Date:: Monday February 15, 1999 19:49:24 GMT
Comments:: Diagnosed with Carcinoid syndrome in 1995. Would like to hear from other carcinoid patients in Wisconsin
Referred By:: Web Search
Age:: 66-79

Name:: Marcia Porter
Email:: sep2000@earthlink.net
Location:: Orlando FL USA 32812
Date:: Monday February 15, 1999 03:37:24 GMT
Comments:: Newly diagnosed with carcinoid.. You give a wealth of information to us newly arrived!!!!
Age:: 56-65

Name:: Jackie Feazel
Email:: debfeazel@aol.com
Location:: Shreveport LA usa 71118
Date:: Sunday February 14, 1999 21:25:39 GMT
Comments:: I was diagnosed 1989 and have been on Sandostatin for almost 4 years. I am under to care of Dr. Lowell Anthony of Susan B. Scott Cancer Center in New Orleans. (This is my daughters e:mail address and I would love to hear from you.)
Age:: 66-79

Name:: Jim Liaromatis
Email:: deadeye@northarkansas.net
Location:: Mountain Home AR USA 72653
Date:: Friday February 12, 1999 18:27:28 GMT
Comments:: I appreciate the information on carcinoid!
Age:: 30-39
Entry:: * * * PRIVATE ENTRY * * *

Name:: Yojaida Hernandez
Email:: HERNANDEZ64@hotmail.com
Web Site:: http://hot.mail
Location:: beaufort SC USA 29902
Date:: Friday February 12, 1999 15:02:34 GMT
Comments:: THANK YOU FOR ALL YOUR INFORMATION ON CARCINOID. IT HAS BEEN A GREAT HELP. MY PRAYERS ARE WITH YOU AND LET'S HOPE THE FUTURE HOLDS ALL OUR MIRACLES.
Referred By:: just browsing
Age:: 30-39

Name:: Ann M. Schwartz
Email:: RAZBA@aol.com
Location:: Festus MO US 63028
Date:: Friday February 12, 1999 04:15:09 GMT
Comments:: Thanks for all the information. My mom, age 65 was diagnosed with carcinoid cancer 2-1/2 years ago. Went through a tough first year, but fought back and was doing great these last 1-1/2 years. It is active again on her bladder, and she is going to MD Anderson in Texas to see if they have any other suggestions, as to how to treat.
Referred By:: NA
Age:: 40-45

Name:: Louwrens Erasmus
Email:: LErasmus@mstsa.co.za
Location:: Pretoria South Africa
Date:: Wednesday February 10, 1999 11:14:47 GMT
Comments:: Good source of info and links. Also for people in other countries, with this disease
Referred By:: Found by surfing
Age:: 46-49

Name:: Ellen Lyle
Email:: elyle@fbw.com
Location:: Vienna VA USA 22182
Date:: Monday February 08, 1999 19:40:39 GMT
Comments:: Susan, I just found and read your story. My husband has been diagnosed this summer with carcinoid. He is undergoing 5FU-leukovoran, sandostatin shots & he is having a rough time of it all. I have tried to contact the Carcinoid support group before with no success. I would really like to be able to converse with someone who has been in the same boat. Thanks!
Age:: 30-39
Entry:: * * * PRIVATE ENTRY * * *

Name:: Loretta Porter
Email:: dporter628@aol.com
Location:: Plantation FL USA 33317
Date:: Saturday February 06, 1999 05:42:23 GMT
Comments:: Just found out today a relative has carcinoid. Found your trials and tribulations to be very heartening and informative. Thank you.
Referred By:: Internet Search
Age:: 30-39
Entry:: * * * PRIVATE ENTRY * * *

Name:: vivian
Email:: s1ammy@prodigy.net
Web Site:: http://none
Location:: tempe AZ usa 85283
Date:: Friday February 05, 1999 18:29:53 GMT
Comments:: Being connected to your web page is helping me learn about the internet!!! Thanks, Viv
Referred By:: susan herself
Age:: 56-65
Entry:: * * * PRIVATE ENTRY * * *

Name:: Charles Purcell
Email:: purcell@halifax.com
Location:: South Boston VA USA 24592
Date:: Tuesday February 02, 1999 00:10:31 GMT
Comments:: My wife took her first LAR injection last week at Duke..This was the first one they have given,she still has to take the twice a day shot for 2 more weeks,we hope and pray the LAR will be a big help,Good Luck to those that take it.
Age:: 40-45

Name:: Eve Slinker
Email:: eslinker@OregonVOS.net
Location:: Enterprise OR USA 97828
Date:: Monday February 01, 1999 06:38:14 GMT
Comments:: I'll spend much time following up on the Carcinoid Tumor links. Thanks.
Age:: 66-79
Entry:: * * * PRIVATE ENTRY * * *

Name:: Bill Schoonover
Email:: galenor@aol.com
Web Site:: http://members.aol.com/galenor/page/index.htm
Location:: Woodbridge VA USA 22193
Date:: Saturday January 30, 1999 02:42:58 GMT
Comments:: I've linked to your site from mine for anyone interested in carcinoid information. I felt it appropriate to check in and sign in...
Referred By:: Susan herself
Age:: 40-45

Name:: Barbara Herman
Email:: barbara.herman@atkearney.com
Location:: Boston MA USA 02210
Date:: Friday January 29, 1999 03:50:21 GMT
Comments:: Susan - Finding your web site tonight has been wonderful. I found out two days ago that I have "neuro-endocrine" tumors in my liver and we suspect they are carcinoids because of my symptoms (flushing, mild diarrhea, etc.) Still going through the tests to find out exactly what this is and then decide a course of treatment. Your story has inspired me to be agressive about getting to the right oncologists now - not later having spent a lot of time with someone who admits he sees "2-3" of these per year. Thanks for all your work! I'll be back for sure!
Referred By:: Cruising the web
Age:: 46-49
Entry:: * * * PRIVATE ENTRY * * *

Name:: Cl;aude Thomas
Email:: NonRev7R@aol.com
Location:: San Mateo CA USA 94402
Date:: Wednesday January 27, 1999 05:02:57 GMT
Comments:: Our daughter has carcinoid, She was operated on one year ago and a large tumor was removed. Its been told that she has many small ones and thus far none are believed to be in her vital organs. She was on three shots per day of Sandosatin for many months, and seemed to do fair. However she has had a rough time geting her diareaha under control Two months ago she was taken off the sandosatin and since then has pains under her left rib cage, which soon they plan to do another scan of..Her attitude is good and she feels her doctor with the limited knowledge he has on carcinoid is doing the best he can..He also reviews the internet for information I am told...Many thanks to your information you publish and the comments from your readers...Somehow, someday perhaps we will get this terrrible sickness under control......
Age:: 66-79

Name:: Dawn & Richard Lillie
Email:: Richard@Lillier.freeserve.co.uk
Location:: England
Date:: Tuesday January 26, 1999 22:29:05 GMT
Comments:: Our father has the same type of cancer of the liver as yourself, he also has octratide injections 3 x daily. However, he has just been told of a different injection which is just 1 x monthly. Which is starting tommorrow.
Age:: 30-39

Name:: Dawn & Richard Lillie
Email:: Richard@Lillier.freeserve.co.uk
Location:: England
Date:: Tuesday January 26, 1999 22:24:13 GMT
Comments:: Our father has the same type of cancer of the liver as yourself, he also has octratide injections 3 x daily. However, he has just been told of a different injection which is just 1 x monthly. Which is starting tommorrow.
Age:: 30-39

Name:: Nancy Stillwell
Email:: Nancynjs@juno.com
Location:: Elyria OH USA 44035
Date:: Tuesday January 26, 1999 16:52:02 GMT
Comments:: I was diagnosed in 1977 with small bowel carcinoid with liver and lymph node involvement. I've had 4 surgeries including removal of the R lobe of my liver and part of the small bowel, colon and lymph nodes. I am not aware of any other long term survivors who still have carcinoid.
Referred By:: surfing the net
Age:: 50-55
Entry:: * * * PRIVATE ENTRY * * *

Name:: Jerome T. Smith
Email:: buddie1@gate.net
Location:: Cooper City FL USA 33328
Date:: Tuesday January 26, 1999 04:14:37 GMT
Comments:: My wifes neice has been diagnosed with Carcinoid Syndorme.
Referred By:: Browsing research on Carcinoid syndrome
Age:: 56-65

Name:: Dwight Baron
Email:: dbaron@wyoming.com
Location:: Wheatland WY 82201
Date:: Monday January 25, 1999 06:32:19 GMT
Comments:: Found your Web Site while looking for info on the Carcinoid Syn.I had surgery about 8yrs ago,and by the Grace of God I have had good medical exams.I'm very impressed with all the information you have in your Web Site.I will be back to use it again. Thank you,DLB
Age:: 50-55
Entry:: * * * PRIVATE ENTRY * * *

Name:: Stacey D. Ingargiola
Email:: legalacei@aol.com
Location:: North Easton MA U.S.A. 02356
Date:: Sunday January 24, 1999 22:00:55 GMT
Comments:: I am currently, once again, undergoing testing for complaints of stomach pain, irritable bowel syndrom, nigth sweats, low blood pressure and abnormal hormonal levels. The term carcinoid has been mentioned; and I was looking form information regarding same. Your site was very helpful and I will return if I need support. Thank You.
Referred By:: I was browsing for information
Age:: 30-39

Name:: Credidio, Maria Lúcia Guarim Nogueira
Email:: credidio@mandic.com.br
Location:: São Paulo Brasil
Date:: Sunday January 24, 1999 20:35:21 GMT
Comments:: I had suffered four surgeries since 1995, because I had four carcinoid tumor. I don't have the right lung, but I am feeling very well. Your site is very important to me. Thank you.
Age:: 40-45

Name:: Susan Lemery
Email:: slemery@mail.coos.or.us
Location:: Myrtle Point OR USA 97458
Date:: Thursday January 21, 1999 02:20:33 GMT
Comments:: Thank you for all your information and links.
Age:: 56-65

Name:: Jean Claude Blanchette
Email:: jc@plomberie.com
Web Site:: http://www.plomberie.com/jc/commerce.html
Location:: Saint-Sauveur Québec Canada J0R 1B0
Date:: Sunday January 17, 1999 05:14:40 GMT
Comments:: A carcinoid was recently diagnosticted on my lever.Just completed chemio treatments recovering from malignant lymphome.No indisposition whatsoever from the carcinoid tumor.All X rays now completed and positive exept for some diverticulus on the intestin. I have the choice of doing nothing and get an expectation 5 years life or undergoing surgery, and gaining good chances of returning to normal life. I am meeting with a surgeon in a few days to set the agenda and the following day leaving for West Palm beach for a three weeks vacation. vacation.They may be difficult days ehead but by moral is still very high and hope to keep it that way. Appreciate your help and the opportunity to comment on this mutual problem. Will be back to keep in touch.
Referred By:: Research engine
Age:: 56-65

Name:: Genena Jones
Email:: nenaj1234@aol.com
Location:: Kingsport TN USA 37664
Date:: Sunday January 17, 1999 01:03:40 GMT
Comments:: I was so thankful to find your web page. I had my appendix removed last week and was told when I went bach in to have the staples removed, they had found a carcinoid tumor. I was horrified and scared. I'm only 22 with a 4year old and twin 3 year olds, a full time student in school, I just didn't know what to say or ask the doctor. Being curious, I went to the library on campus and looked up this word that I had never heard of. I got a little bit of info, but it wasn't until I found your wonderful site that I felt better. Thank you for the time you put into making this information handy. God bless you.
Referred By:: search engines
Age:: 18-29
Entry:: * * * PRIVATE ENTRY * * *

Name:: Brian K. Abbott
Email:: rangerhq@cet.com
Location:: Spokane WA usa 99207
Date:: Saturday January 16, 1999 08:15:04 GMT
Comments:: My dad has metastatic carcinoid syndrome. They just took 50% of his small intestine and found spots on his liver. They got the majority of the tumor from his intestine. They are now talking about chemo therapy when he has recovered from his surgery.I was asked to do a search on line for them and have come across your page and thought it might be helpful.
Referred By:: search engines
Age:: 30-39

Name:: Roger Barnett
Email:: rbarnett@uop.edu OR rogerbarnett@att.net
Location:: Stockton CA US 95207
Date:: Saturday January 16, 1999 05:38:39 GMT
Comments:: Am currently being tested for "carcinoid Syndrome", as a result of an "anomaly" in a 24 hour urine test. Just heard I had no abnormalities on liver (after CT scan), or on lungs (after X ray). Your site is invaluable - I shall return often to follow through. I am with Kaiser Permanente - anyone with any information on Kaiser's attitude to this condition? Let me state that my own Kaiser doctor is excellent, and Kaiser has been excellent for me over the past 13 years! Keep up your good work!
Referred By:: link from www.carcinoid.org
Age:: 56-65

Name:: Shirley Warnica
Email:: warnica@peoplescom.net
Location:: Yantis TX USA 75497
Date:: Friday January 15, 1999 16:32:56 GMT
Comments:: After reading your story, I must feel very fortunate. My first flush occured the first week of November 1998. By December 7, the primary had been located and removed. I am now in the "wait and see" mode when a new CATScan will be performed to check the growth on the liver. I have been on Sandostatin since the 9th of December.
Referred By:: Just Surfing
Age:: 56-65

Name:: Tom Dunn
Email:: ripper56@csi.com
Web Site:: http://N/A
Location:: Apache Jct AZ USA 85220
Date:: Thursday January 14, 1999 19:34:29 GMT
Comments:: Absolutely love the sites, both of them! Always thought the
Referred By:: 1999 pickin' schedule
Age:: 40-45

Name:: Dawn Clark
Email:: dawnz@winz.co.nz
Location:: Near Wellington New Zealand
Date:: Saturday January 09, 1999 08:04:24 GMT
Comments:: Thank you Thank you Thank you Ive been trying to get information for so long..and here
Referred By:: A friend (MAGNUM) who found it on the web for me
Age:: 50-55

Name:: Marilyn Cannon
Email:: koranch@transport.com
Location:: Long Creek OR USA 97856
Date:: Friday January 08, 1999 20:14:38 GMT
Comments:: Hi
Referred By:: hi
Age:: 50-55

Name:: Theo Lambrakos
Email:: theolamb@aol.com
Web Site:: http://not yet but soon
Location:: Hotchkiss CO USA 81419-9736
Date:: Thursday January 07, 1999 22:21:49 GMT
Comments:: Saw it in the e-mail and finally decided to check it out. Looks GREAT!!
Referred By:: from e-mail on carcinoid newsgroup
Age:: 40-45

Name:: Tim Whyte
Email:: timwhyte@dial.pipex.com
Location:: UK
Date:: Thursday January 07, 1999 20:09:13 GMT
Comments:: Not so rare as I thought!

Name:: Cindy and David Minor
Email:: DCSSAMINOR@WORLDNET.NET
Location:: SANDY HOOK CT USA 06482
Date:: Thursday January 07, 1999 00:14:45 GMT
Comments:: Susan,
Referred By:: ELAINE
Age:: 40-45

Name:: Cathy Ford
Email:: fordsplk@aol.com
Web Site:: http://none
Location:: Spring Lake NJ USA 07762
Date:: Wednesday January 06, 1999 23:01:59 GMT
Comments:: You are such an interesting person. I was so happy to read
Referred By:: read under carcinoid tumor
Age:: 50-55

Name:: Corie Dean
Email:: cadean@natpipe.com
Location:: Federal Way WA USA 98003
Date:: Tuesday January 05, 1999 18:03:20 GMT
Comments:: I am a 45 year old female who was just diagnosed in November 1998 with Stage III carcinoid cancer. For 10 monts the doctors kept telling me I had Irritable Bowel Syndrome. I had emergency surgery in Puerto Vallarta, Mexico on Thanksgiving day. It seems to be a wait and see program right now. I am looking for an ocologist in my area with experience in this kind of cancer and for research programs. Your web page is one of the steps I am taking to educate myself and to seek information. Thank you for the time you have spent putting it together and keeping it updated. This is a scary time for me and it is comforting to know there are people out there who understand and care.
Referred By:: Surfing the net
Age:: 40-45

Name:: roger rigney
Email:: rsrigney@hrtc.net
Location:: wilkinson IN USA 46186
Date:: Monday January 04, 1999 19:14:34 GMT
Comments:: I was diagnosed with carcinoid exactly one month before you, on april 10, 1995, via exploratory surgery to locate source of bowel obstruction. Metastized to liver.
Age:: 50-55

Name:: James Mac Innes
Email:: macinnesj@hotmail.com
Location:: richton park IL usa 60471
Date:: Monday January 04, 1999 03:34:05 GMT
Comments:: this is an interesting site. We need all the help we can get
Age:: 50-55
Entry:: * * * PRIVATE ENTRY * * *

Name:: David Seward
Email:: wcfoster@sympatico.com
Web Site:: http://www.carcinoid.org
Location:: Ancaster, Ontario DC Canada L9G2H4
Date:: Monday January 04, 1999 02:00:41 GMT
Comments:: I have just been diagnosed with Carcinoid Syndrome. I'm 39, with two children.
Referred By:: www.carcinoid.org
Age:: 30-39

Name:: ROSS MACLEOD
Email:: ventolin@ihug.co.nz
Location:: Auckland New Zealand
Date:: Sunday January 03, 1999 04:49:10 GMT
Comments:: I am a 31 year old doctor. I have a wife,Victoria and a 2/12 old baby Hamish.Unfortunately I have an atypical carcinoid tumour.Thought to be pancreatic in origin metastasis involve both the liver (unresectable) and abdo lymph nodes.Appreciate your help.
Referred By:: self
Age:: 30-39

Name:: Glenn McGinnis
Email:: congmc@us.ibm.com
Location:: St Petersburg FL USA 33703
Date:: Saturday January 02, 1999 08:22:23 GMT
Comments:: My wife Lynn also has heavy involvement with carcinoid liver masses.
Age:: 50-55

Name:: joe craparotta
Email:: joe_craparotta@yahoo.com
Location:: Lindenhurst NY usa 11757
Date:: Friday January 01, 1999 01:42:57 GMT
Comments:: Just here for a friend who's been suffering this for over 18
Referred By:: Sufin......
Age:: 40-45

Name:: TERESA MORGAN
Email:: teresa3@pdq.net
Location:: SPRING TX USA 77388
Date:: Tuesday December 29, 1998 19:05:52 GMT
Comments:: I WAS RECENTLY DIAGNOISED WITH CARCINOID, I HAVE A 16CM(HUGE) LIVER TUMER.(ON 12/15/98) I AM STILL LOOKING FOR THE
Age:: 30-39

Name:: Harold and Linda Romfo
Email:: FORROM@aol.com
Web Site:: http://---
Location:: Boring OR USA 97009
Date:: Tuesday December 29, 1998 06:49:13 GMT
Comments:: Harold carcinoid patient.....Linda caregiver.
Referred By:: ----
Entry:: * * * PRIVATE ENTRY * * *

Name:: norm bush
Email:: norguy@byesville.net
Location:: byesville OH usa 43725
Date:: Monday December 28, 1998 23:13:58 GMT
Comments:: carcinoid patient
Age:: 46-49

Name:: Lynn Fallik
Email:: Fallik2@aol.com
Location:: Columbia MD U.S. 21045
Date:: Monday December 28, 1998 14:07:44 GMT
Comments:: Susan,
Age:: 40-45

Name:: jim beatty
Email:: jbeatty@reas-inc.com
Location:: Brunswick OH usa 44109
Date:: Thursday December 24, 1998 20:22:45 GMT
Comments:: My mother has carcenoid and I am surfing around looking for more information to pass on to her. She may buy a PC in the next month or two. If and when she does, I want to have some links of her to go to. Thanks very much
Referred By:: no one/ Mother has carcenoid
Age:: 30-39

Name:: joe craparotta
Email:: joe_craparotta@yahoo.com
Location:: Lindenhurst NY usa 11757
Date:: Tuesday December 22, 1998 01:11:44 GMT
Comments:: Just check around for a good friend.... Great stuff !!
Referred By:: just surfin
Age:: 40-45
Entry:: * * * PRIVATE ENTRY * * *

Name:: Alice Y. Brow
Email:: Allie893@AOL.COM
Location:: Browns Mills NJ USA 08015
Date:: Monday December 21, 1998 20:16:08 GMT
Comments:: Great site, very informative and encouraging. I was checking out Carcinoid for my best friend, whose mother was just diagnosed with Carcinoid. I always feel gaining knowledge throws at us. Thanks Alice Brown
Age:: 50-55
Entry:: * * * PRIVATE ENTRY * * *

Name:: Vivian Schulkin
Email:: VivExel1@AOL.com
Web Site:: http://none, just hope to learn to develop one
Location:: Brooklyn NY
Date:: Sunday December 20, 1998 05:27:26 GMT
Comments:: I was diagnosed in 1/94 with a lung carcinoid. It was surgically removed. Now, I may have another, in the other lung. I have not been able to find any information on this, until tonight. Even though what I am reading is scarey, it's better than nothing. It's so wonderful that people all over the world can communicate this way, and each one seeing that so many people can be ill and share their experiences. Thank you, and the others who wrote in your guest book.
Referred By:: Carcinoid Foundation site
Age:: 50-55

Name:: Bonnie Lohman
Email:: fertilepickens@compuserve.com
Web Site:: http://ourworld.compuserve.com/homepages/fertilepickens.htm
Location:: Tucson AZ USA 85750
Date:: Sunday December 20, 1998 05:08:32 GMT
Comments:: Susan,'
Age:: 50-55

Name:: holli daniel
Email:: bdlf68a@prodigy.com
Web Site:: http://none
Location:: cold spring MN usa 56320
Date:: Monday December 14, 1998 16:32:25 GMT
Comments:: I have many questions I would like to write you about. Thank you for sharing your story with everyone. God Bless.
Referred By:: self
Age:: 40-45

Name:: Christine Murphy
Email:: chrissym@openlink.org
Location:: Manchester United Kingdom
Date:: Sunday December 13, 1998 11:01:42 GMT
Comments:: I have an inoperable carcinoid tumour. I enjoyed your page and was really impressed by all the research you have done! Keep happy and healthy!
Age:: 30-39

Name:: Jim Hayden
Email:: ifg@micron.net
Location:: Coeur d'Alene ID USA 83815
Date:: Friday December 11, 1998 03:43:09 GMT
Comments:: Thanks for all the help Susan. My father was diagnosed with a carcinoid tumor in February 1995, with one lesion on his liver. He's doing ok, but has lost some weight and has pain. He doesn't particularly like to spend time on possible helps for his condition, so I'm trying to look into it for him.
Age:: 40-45

Name:: Jim Hayden
Email:: ifg@micron.net
Location:: Coeur d'Alene ID USA 83815
Date:: Friday December 11, 1998 03:41:21 GMT
Comments:: Thanks for all the help Susan. My father was diagnosed with a carcinoid tumor in February 1995, with one lesion on his liver. He's doing ok, but has lost some weight and has pain. He doesn't particularly like to spend time on possible helps for his condition, so I'm trying to look into it for him.
Age:: 40-45

Name:: nancy brownlee
Email:: park@wc.edu
Location:: weatherford TX us 76087
Date:: Thursday December 10, 1998 22:22:53 GMT
Comments:: Your page was the first usable information I found on Carcinoid tumors. I was just diagnosed and am at a loss as to how to react. Blindness? Dementia? Surgery? Chemo? I have no perspective yet. Thank you for providing information in a readable, articulate way.
Age:: 50-55

Name:: Harry and Brenda Roberts
Email:: Bdrdavis@aol.com
Location:: Hot Springs AR USA 71913
Date:: Wednesday December 09, 1998 17:42:52 GMT
Comments:: We certainly enjoy all your posts on the listserver..We are giving your web site to Harry's oncologist..Dr. Abdul Jazieh
Referred By:: carcinoid listserver
Age:: 56-65

Name:: marcia blascoe
Email:: marciab@MCI2000.com
Location:: belvidere IL usa 61008
Date:: Friday November 27, 1998 13:45:37 GMT
Comments:: recently diagnosed. need as much information as possible.
Referred By:: my sister
Age:: 46-49
Entry:: * * * PRIVATE ENTRY * * *

Name:: Ric Frambach
Email:: rjf@radiks.net
Location:: Des Moines IA 50314
Date:: Wednesday November 25, 1998 22:49:06 GMT
Comments:: Thank-you for your page. It helped me count my blessings to date.
Age:: 40-45

Name:: Laura Montgomery
Email:: Hugs4u2day@aol.com
Location:: Wenatchee WA USA 98801
Date:: Saturday November 21, 1998 22:44:47 GMT
Comments:: It is obvious you have spent many hours on your homepage. I wish I knew how to make one to be able to share my story as you have. Thank you for all of the information you have provided I am sure there are many others who have found the information of great use. Again thank you for sharing.
Age:: 30-39

Name:: Diana Weinman
Email:: abediw@nerc.com
Location:: Cranbury NJ US 08512
Date:: Saturday November 21, 1998 17:09:12 GMT
Comments:: Thank you for sharing your story. You are cetainly an inspiration to us all. Keep up the good work and God Bless you.
Referred By:: email from you
Age:: 56-65
Entry:: * * * PRIVATE ENTRY * * *

Name:: Bob Hendricks
Email:: rwhend@rochester.infi.net
Web Site:: http://www.rochester.infi.net/~rwhend/
Location:: Rochester NY USA 14168
Date:: Friday November 20, 1998 21:21:50 GMT
Comments:: Greatly enjoyed visiting your site. Will
Referred By:: Bev Baker (a one-time high school classmate)
Age:: 66-79

Name:: Carolyn Panning
Email:: panning@ibm.net
Location:: Blaine MN USA 55449
Date:: Thursday November 19, 1998 01:26:17 GMT
Comments:: Hi Susan!
Referred By:: Net Search
Age:: 30-39

Name:: Jerry Allen
Email:: allenjwsc@yahoo.com
Web Site:: http://www.webwizards.net/useful/
Location:: West Columbia SC 29170
Date:: Wednesday November 18, 1998 14:51:47 GMT
Comments:: Just to let you know that I stopped by and read the chronology of your medical "adventures" for the first time. Some time ago I realized that each of us must be an integral part of our own treatment in times of illness. You are a prime example of that. The next time there is an illness in my family, I'm going to return and reread all you went through and overcame. It will help.
Age:: 40-45
Entry:: * * * PRIVATE ENTRY * * *

Name:: Donna Bradley
Email:: dbrad_wy@hotmail.com
Location:: Evansville WY 82636
Date:: Wednesday November 18, 1998 06:29:27 GMT
Comments:: Thank you Susan for taking the time to share your story. I have had the 5-H urine test run and it came back very high. The doctor is redoing the test. I knew about the foods to stay away from though so I suspect the test to be the same. He has also ordered the chest exrays and a cat scan for next week. My biggest problems are the flushes and the diarhea. Did you have any problems with the flushes? You didn't mention them. I agree that you have to take an active part in your own health and I also agree a happy, positive outlook will do much. Thanks again! Donna
Referred By:: Carcinoid.org
Age:: 46-49

Name:: Colette Morrison
Email:: physio@ns.sympatico.ca
Location:: Baddeck Canada B0E1B0
Date:: Wednesday November 18, 1998 03:31:10 GMT
Comments:: Susan, your new additions to the web page are fantastic. I know what a lot of work it must have been, but you did a great job. Thanks from all of us fellow carcinoids.
Age:: 46-49

Name:: Barry (Lee) Yazell
Email:: yazell@swbell.net
Location:: Topeka KS USA 66614
Date:: Wednesday November 18, 1998 03:00:39 GMT
Comments:: I will send you an "e-mail" of my case story. You've had real
Referred By:: wife
Age:: 50-55

Name:: BETTE BIDDLE-BRUNO
Email:: EBRUNO6898@AOL.COM
Web Site:: http://AOL?
Location:: PHILADELPHIA PA USA 19111
Date:: Wednesday November 18, 1998 02:36:53 GMT
Comments:: GOD BLESS YOU!
Referred By:: MY ONCOLOGIST TOLD ME TO SEARCH FOR CARCINOID INFO ON THE INTERNET
Age:: 40-45

Name:: Bonnie Lohman
Email:: fertilepickens@compuserve.com
Location:: Tucson AZ USA 85750
Date:: Wednesday November 18, 1998 02:33:34 GMT
Comments:: Susan,
Age:: 50-55
Entry:: * * * PRIVATE ENTRY * * *

Name:: geri knoll
Email:: gknoll@worldnet.att.net
Location:: saratoga Springs NY usa 12866
Date:: Tuesday November 17, 1998 23:09:03 GMT
Comments:: Susan, I haven't been in touch for awhile, butI read avidly
Age:: 66-79

Name:: Shirley Crow Stephens
Email:: stephens@sheltonbbs.com
Location:: Bernie MO USA 63822
Date:: Tuesday November 17, 1998 22:43:21 GMT
Comments:: Susan..great web page and you are such a dear friend.
Entry:: * * * PRIVATE ENTRY * * *

Name:: Charles Purcell
Email:: purcell@halifax.com
Location:: South Boston VA USA 24592
Date:: Tuesday November 17, 1998 22:30:39 GMT
Comments:: My Wife Has Carcinoid,currently on Interferon,Santstaton,,she has no energy.I enjoy your web page ,it helps a lot to learn more about this cancer and treatments,she currently is going to Duke Hospital
Referred By:: Surfing
Age:: 50-55

Name:: Carol Thompson
Email:: aceem@hotmail.com
Location:: AR 72143
Date:: Tuesday November 17, 1998 21:13:08 GMT
Comments:: Susan, I was interested in your new chemo. Suzanne has
Age:: 46-49

Name:: Linda Furline
Email:: linda_furline@peoplesoft.com
Location:: Pleasanton CA USA 94566
Date:: Tuesday November 17, 1998 19:29:19 GMT
Comments:: I have been sharing updates to your page with my Mother, who has been fighting carcinoids for over 2 years. I'm grateful to have a place to check on new information and to show to her that she's not alone.
Referred By:: Self
Age:: 30-39

Name:: Tatjana Westphal
Email:: T.T.Westphal@pharm.uu.nl
Location:: Utrecht Holland
Date:: Tuesday November 17, 1998 14:21:14 GMT
Comments:: My dad has got a carcinoid between the aorta and the longarteria.
Age:: 18-29
Entry:: * * * PRIVATE ENTRY * * *

Name:: Rita Lovshe
Email:: labstore@mvp.net
Location:: Warrenton MO us 63383
Date:: Tuesday November 17, 1998 05:59:04 GMT
Comments:: Hi Susan, Great page. Keep up the good work and positive
Referred By:: Susan and carcinoid lists
Age:: 50-55

Name:: H@ppy (Carol)
Email:: carola@kalama.com
Web Site:: http://www.kalama.com/~carola/
Location:: Longview WA USA 98632
Date:: Tuesday November 17, 1998 03:46:30 GMT
Comments:: Hi Susan.....what an encouraging report...I'm so very, very happy for you....
Referred By:: you
Age:: 56-65

Name:: Roland Classen
Email:: rdclassen@juno.com
Location:: Snohomish WA USA 98296
Date:: Tuesday November 17, 1998 01:47:17 GMT
Comments:: Thanks for all the research you have done and for sharing it with others. God bless.
Referred By:: found by searching internet
Age:: 50-55

Name:: Carol Yazell
Email:: yazell@swbell.net
Location:: Topeka KS USA 66614
Date:: Monday November 16, 1998 19:56:59 GMT
Comments:: My husband Barry was diagnosed 4 years ago. he currently seems to be losing the battle. Has had chemo, radiation, 4 hepatic embolizations, and sandstatin for 4 years
Referred By:: noone, found surfing net
Age:: 50-55

Name:: Howard C. Anderson
Email:: handy@primenet.com
Web Site:: http://www.primenet.com/~handy
Location:: Tempe AZ USA
Date:: Monday November 16, 1998 02:24:01 GMT
Comments:: Test
Age:: 50-55