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Carcinoid A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

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Sunny Susan Anderson's Home Library of

Cancer / Health / Healing / Wellness / Medical Books


 Updated: 27 April 2017


27 April 2017 this web site was 20 years old, the 1st by a Carcinoid patient!


There is HOPE for those diagnosed with Carcinoid/NETS. 

I've started my 23rd year of active, full life: May 10, 1995 -- May 10, 2017.

April 27, 2017 was the 20th anniversary of this page;
 the FIRST by a Carcinoid patient.


April 23, 2014 I began Dialysis every evening at home
due to being Stage 5 Chronic Kidney Disease.

My memoir book Becoming Sunny Susan is now available
softcover and ebook!  By Susan L. Anderson           

NEW -  
Click on http://www.youtube.com/watch?v=sBZnPOGHf-8

to view the 90 second book trailer video from YouTube!


My story is one many of you can identify with – an uplifting look at a life that I am determined to live well, despite all the obstacles I have been dealt. At the heart of the story is the idea of LIVING with cancer. It took eight years to correctly diagnose my rare disease, Carcinoid/ Neuroendocrine Tumors. Then, they said I would die in just a few more years. That was 18 years ago, and here I am! How have I faired? Very well. Read the book to find out how I have lived a happy life, even with cancer.

Would you help to spread the positive word by telling your friends, by gifting the book, and by posting a review for other readers on the www.amazon.com  page? We know how valuable a positive recommendation can be.

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When I was diagnosed with Carcinoid Cancer May 10, 1995, besides my immediate research on the internet, I searched for books to purchase and read, plus friends brought me books that had helped them.  Over the next several months I read about 100 books, and also listened to books on tape.  I have now revised and shortening the very long list that I have had posted on my web page for years, and have removed some of the books I have read, but do not feel they were or are beneficial to someone, or the families of someone, dealing with Carcinoid.  I shall list what I highly recommend first and then go from there.   I have included a small amount of information, just before audio tapes, on Breast cancer, Thyroid problems, and Type 2 Diabetes.

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What books were most useful to me when first diagnosed, and some are reference books I like having in my home library - some have been updated since I first read then.  Sunny Susan

Everyone's Guide to Cancer Therapy: How Cancer Is Diagnosed, Treated and Managed Day to Day, 2nd Edition, copyright 1994, ISBN 0-8352-2427-2, $19.95 softcover, 714 pages, by Malin Dollinger, M.D., Ernest H. Rosenbaum, M.D. and Greg Cable – the FIRST book all should read, in my opinion, Susan

The Alpha Book on Cancer and Living: For Patients, Family and Friends by The Alpha Institute, P.O. Box 2463, Alameda, CA 94501 (1-800- 866-4111), copyright 1993, 486 pages.  ISBN 0-9632360- 0-8, softcover $16.95

50 Essential Things To Do When The Doctor Says It's Cancer by Greg Anderson

The Activist Cancer Patient: How to Take Charge of Your Treatment by Beverly Zakarian

I Can Cope: Staying Healthy With Cancer  by Judi Johnson, R.N., Ph.D. and Linda Klein (Judi is co-founder of the American Cancer Society "I Can Cope" Program) 


Mildred “Millie” Kowalski, of Novartis Oncology announced at the Carcinoid Conference, in New Orleans, 9/22/2012 that I, Susan Anderson, am the recipient of the 2012 Warner Advocacy Award. I was sorry that we were unable to attend.  I am honored and thrilled to receive this very meaningful award!  Dr. Richard R. W. Warner, at my request, accepted this award on my behalf.



Susan L. Anderson, or "Sunny" Susan as she's affectionately known, has dedicated her life to people affected by carcinoid/neuroendocrine tumors (NETs) and has become an energetic advocate for, and educator of, the disease. Her journey began on May 10, 1995, when she was diagnosed with carcinoid cancer after an 8-year-long battle through one misdiagnosis after another.

Susan immediately began researching the disease and soon learned there wasn't much information available about NETs. Many doctors believed patients with NETs had a short time to live. Born with a self-proclaimed "type A" personality, Susan refused to accept the supposed facts. She says, "I was told by every doctor to 'learn to live with it.' Probably the average person would accept that. I refused to and because of that I'm still alive."

Through her research, Susan discovered Monica Warner's website for the Carcinoid Cancer Foundation. From that moment on, Susan Anderson, Monica Warner, and Dr. Richard Warner formed a team determined to bring attention to this uncommon disease and advocated tirelessly for patients everywhere.

Recognizing the need for greater patient support, Susan created the first website about NETs by a patient, which celebrates its 15th anniversary this year. The site, carcinoidinfo.info, continues its success in assisting people affected by the disease, and has more than 380,000 visitors. In addition to this "labor of love," Susan has dedicated her time to personally answering more than 100,000 e-mails, assisting patients and caregivers from around the world. Susan's in-depth relationships within the carcinoid/NET community even allow her to refer international patients to support groups in their respective countries.

Susan has attended numerous conferences throughout the world as a guest speaker, including the first International Meeting of Patient Self-Help Groups in Berlin, Germany. One of her fondest memories is from 2009, when Dr. Richard Warner invited Susan to take part in a 12-person panel of patients with carcinoid cancer at the Patient Support Advisory Board meeting in New York. When not attending conferences, Susan participates in many boards and support groups, some of which she has founded.

"Sunny" Susan has her nickname for a reason. Each step of her journey has been accompanied by unwavering optimism, determined energy, and an incredible zest for life. It makes sense that her daily goals are to "have some good 'belly laughs,' assist others, and live each day to its fullest enjoying each and every one."

Susan is honored to share recognition alongside the late Monica Warner, the pioneer of Patient Advocacy for NET patients who was also a dear friend. The recognition also extends to amazing patient advocates everywhere, including Maryann Wahmann and Jan Naritomi-Hart, the 2010 and 2011 Warner Advocacy Award recipients, respectively.

Please visit the Warner Advocacy Award Guest Book and leave a message congratulating our 2012 winner.


Novartis Patient Advocacy

Novartis Oncology Affairs and Patient Advocacy provide support to patients through an array of programs and services


The NET Alliance

The NET Alliance is a Novartis Oncology initiative to help improve outcomes for patients with NETs



Useful reference books that I keep in our home library:

Taber’s Cyclopedic Medical Dictionary – Thumb-Indexed Version (19th edition 2001) by Donald Venes, Clayton L. Thomas, Clarence Wilbur Taber

The Merck Manual of Diagnosis and Therapy: 17th Edition, (1999)

Interpretation of Diagnostic Tests: A Synopsis of Laboratory Medicine by Jacques Wallach, M.D.

Nursing 2004 Drug Handbook by Lippincott, Springhouse

The Cancer Dictionary: An A-to-Z guide to over 2,500 terms by Roberts Altman & Michael J. Sarg M.D.

Deadly Drug Interactions: The People's Pharmacy Guide (1997)  by Joe Graedon & Teresa Graedon, Ph.D.

Deadly Drug   33  Interactions: The People's Pharmacy Guide (1995) by Joe Graedon & Teresa Graedon, Ph.D.

The Pill Book, 7th Edition (June 1996) editor Harold M. Silverman Pharm.D.

Effective Support Groups: How to Plan, Design, Facilitate, and Enjoy Them by James E. Miller

The Wellness Community Guide to Fighting for Recovery from Cancer by Harold H. Benjamin

Cancer Support Groups: A Guide for Facilitators by Joan Hermann & American Cancer Society

Additional useful books:

Healing Wisdom: Wit, Insight & Inspiration for Anyone Facing Illness by Greg Anderson

How To Live Between Office Visits: A Guide to Life, Love and Health by Bernie S. Siegel, M.D.

Life is Good...except for this cancer (28 year olds experience with carcinoid) by Peter Polishuk

Rollercoaster: A Cancer Journey by Wayne Tefs (re-inventing myself after diagnosis)

The Carcinoid Syndrome by Basil RuDusky M.D. & Danielle Martine

Healing Lessons by Sidney J. Winawer, M.D. (wife died of Carcinoid)

Effective Support Groups by James E. Miller

The Support Group Sourcebook: What They Are, How You Can Find One, and How They Can Help You by Linda L. Klein

The Chemotherapy Survival Guide by Judith McKay R.N. and Nancee Hirano R.N., M.S.N.

Dr. Susan Love's Breast Book by Dr. Susan M. Love M.D.

Timeless Healing: The Power & Biology of Belief  by Herbert Benson M.D. with Marg Stark

Prayer Is Good Medicine: How to Reap the Healing Benefits of Prayer by Larry Dossey M.D.

Love, Medicine & Miracles: Lessons Learned About Self-Healing From A Surgeon's Experience With Exceptional Patients by Bernie S.  Siegel M.D.

Peace, Love & Healing: Bodymind Communication & The Path To Self-Healing: An Exploration by Bernie S. Siegel M.D.

Healing and The Mind by Bill Moyers (companion to the PBS series by the same name) Natural Health, Natural Medicine: A comprehensive manual for wellness and self-care by Andrew Weil M.D.

Choices in Healing: Integrating The Best of Conventional and Complementary Approaches to Cancer by Michael Lerner (basis for Bill Moyer's PBS series "Healing and the Mind")

8 Weeks To Optimum Health: A Proven Program for Taking Full Advantage of Your Body's Natural Healing Power by Andrew Weil M.D.

Getting Well Again: The Bestselling Classic About The Simontons' Revolutionary Lifesaving Self-Awareness Techniques by O. Carl Simonton M.D., Stephanie Matthews-Simonton and James L. Creighton

Kitchen Table Wisdom by Rachel Naomi Remen M.D. (forward by Dean Ornish, M.D.)

Minute Meditations for Healing and Hope by Emilie Barnes

Healing Words: The Power of Prayer and The Practice of Medicine by Larry Dossey M.D.

Laugh! I Thought I'd Die (If I Didn't): Daily Meditations on Healing Through Humor by Anne Wilson Schaef

The 22 Non-Negotiable Laws of Wellness: Take Your Health into Your Own Hands to Feel, Think, and Live Better Than You Ever Thought Possible by Greg Anderson                           

Wherever You Go, There You Are: Mindfulness Meditations in Everyday Life by Jon Kabat-Zinn

A Marriage Made in Heaven or Too Tired for an Affair (for laughs) by Erma Bombeck

Chicken Soup for the Surviving Soul: 101 Healing Stories of Courage and Inspiration by Jack Canfield, Mark Victor Hansen, Patty Aubery & Nancy Mitchell, R.N.

Every Second Counts by Lance Armstrong with Sally Jenkins

It’s Not About the Bike: My Journey Back to Life by Lance Armstrong with Sally Jenkins

The Four Things That Matter Most: A Book About Living by Ira Byock

The Caregiver's Manual by Kay Patie & Gene B. Williams

Home Care: An Alternative to the Nursing Home by Florine DuFresne (may be out of print)

How We Die: Reflections on Life's Final Chapter by Sherwin B. Nuland

The Wheel of Life: A Memoir of Living and Dying by Elisabeth Kubler-Ross, MD.

On Death and Dying by Elisabeth Kubler-Ross, M.D.

The Thyroid Solution: A Mind-Body Program for Beating Depression and Regaining Your Emotional and Physical Health (1999) by Ridha Arem, MD.

The Thyroid Sourcebook: Everything You Need to Know About: Symptoms of hyperthyroidism and hypothyroidism; Graves' disease and thyroid eye disease; Hashimoto's disease and thyroiditis; Treatments, medications, and nutrition; Thyroid disease during pregnancy and menopause; Thyroid cancer  (1998)  by Sara M. Rosenthal

Living Well With Hypothyroidism: What Your Doctor Doesn't Tell You...That You Need to Know (2000) by Mary J. Shomon

Journey Into Healing: Awakening the Wisdom Within You by Deepak Chopra M.D.

Dr. Folkman's War: Angiogenesis and the Struggle to Defeat Cancer by Robert Cooke & C. Everett Koop

None of These Diseases: A famous doctor's biblical prescription for healthier and happier living by S. I. McMillen M.D.

Staying Alive: A Family Memoir by Janet Reibstein (mostly breast cancer, but Carcinoid mentioned on page 131 as also in the family)

Dr. Rosenfeld's Guide to Alternative Medicine by Isadore Rosenfeld M.D.

Mind as Healer, Mind as Slayer by Kenneth R. Pelletier (may be the "classic" book that began the revolution in mind/body medicine)

Alternatives in Cancer Therapy: The Complete Guide To Non-Traditional Treatments by Ross Pelton R.Ph., Ph.D. & Lee Overholster Ph.D.

Healing Nutrients by R. D. Quillin Ph.D., R.D.

Staying On The Path by Wayne W. Dyer  (collection of inspirational quotes)

Anatomy of an Illness, As Perceived by the Patient: Reflections on Healing and Regeneration by Norman Cousins

Guilt Is The Teacher, Love Is The Lesson: A Book to Heal You, Heart and Soul by Joan Borysenko Ph.D.

The Thyroid Solution:
A Mind-Body Program for Beating Depression and Regaining Your Emotional and Physical Health (1999) by Ridha Arem, MD.

The Thyroid Sourcebook: Everything You Need to Know About: Symptoms of hyperthyroidism and hypothyroidism; Graves' disease and thyroid eye disease; Hashimoto's disease and thyroiditis; Treatments, medications, and nutrition; Thyroid disease during pregnancy and menopause; Thyroid cancer  (1998)  by Sara M. Rosenthal

Living Well With Hypothyroidism: What Your Doctor Doesn't Tell You...That You Need to Know (2000) by Mary J. Shomon


The First Year Type 2 Diabetes: An Essential Guide for the Newly Diagnoses by Gretchen Becker w/Foreword by Allison B. Goldfine, M.D.

American Diabetes Association Complete Guide to Diabetes, 3rd Edition Completely Revised, The Ultimate Home Reference

The Diabetes Food & Nutrition Bible: A Complete Guide to Planning, Shopping, Cooking, and Eating by Hope S. Warshaw, MMSc, RD, CDE, and Robyn Webb, MS

The Diabetes Travel Guide by Davida F. Fruger, MSN, RN, CS, CDE

Nutrition in the Fast Lane: A Guide to Nutrition and Dietary Exchange Values for Fast Foods by Fast Food Facts (LINK)

Diabetes Myths, Misconceptions, and Big Fat Lies! by Kris Swenson, RN, CDE and Betty Brackenridge, MS, RD, CDE


(tape) Benson M.D., Herbert w/Marg Stark - Timeless Healing

(tape) Carlson, Richard & Shield, Benjamin, editors - Handbook For The Soul

(tape) Dossey M.D., Larry - Prayer Is Good Medicine

(tape) Dossey M.D., Larry - Medicine, Meaning, and Prayer

(tape) Dossey M.D., Larry - Be Careful What You Pray For...

(tape) Hay House Sampler - featuring Hay, Borysenko &  others

(tape) Holloway, Linda - Feeling Better / Feeling Sound: How Sound Can Heal and Harmonize Your Life

(tape) Kabat-Zinn, Jon - Guided Body Scan Meditation from Mindfullness Meditation

(tape) LeShan Ph.D., Lawrence - How To Meditate: 4 classic meditation techniques

(tape) Moyers, Bill - Healing and The Mind

(tape) Naparstek, Belleruth - Health Journeys For People with Cancer

(tape) Siegel M.D., Bernie S. - Peace, Love & Healing:  Bodymind Communication & The Path To Self-Healing: An Exploration

(tape) Siegel M.D., Bernie S. - How To Be An Exceptional Patient: Living With Love and Hope

(tape) Siegel M.D., Bernie S. - Personal Reflections and Meditations

(tape) Siegel/ECaP - Health and Well-Being: An ECaP Subliminal Affirmation Tape

(tape) Siegel M.D., Bernie S. - EcaP Presents: Healing Meditations with Dr. Siegel

(tape) Siegel M.D., Bernie S. - Meditations for Enhancing Your Immune System

(tape) Siegel M.D., Bernie S. - Healing from the Inside Out

(tape) Simonton M.D., O. Carl - Dr. Carl Simonton's Getting Well: A step-by-step, self-help guide to overcoming cancer for patients and their families

(tape) Weil M.D., Andrew - Spontaneous Healing

(tape) Weil M.D., Andrew with Toms, Michael - The New   Approach To Medicine

(tape) Williams, Victor - The Healing Power in Humor

Please read last section on this page - below.  Thank you, Susan, 1-26-2009

Since 1996 --- when I first located others with Carcinoid --- I have answered every email sent to me, although some replies were delayed longer than I liked. I am NO longer able to reply to all e-mails due to the volume and other things going on in my life (all good).  I do love hearing from others, but an unable to reply to all individually.  I shall not forget my many Carcinoid friends and of course shall reply to you … as time permits. 
This web site was 20 years old on April 27, 2017.

Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time.  Yes, there is wireless internet and we have tried that a number of places.  But, if I deal with email when we are away from home then it is not a "restful vacation" for me.

PLEASE use the SEARCH capability at the top my pages.  You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.

To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday  10 a.m. to 4 p.m. Eastern Time at  1-888-722-3132 (free) or 1-914-693-1001.   “The information and support line” is staffed by medical professionals.   Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message.  The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org

CCF -  Serving the carcinoid/NETs  patient and medical community for 
nearly 50 years (chartered in 1968)
   “Meets Extensive Standards of America’s Most Experienced Charity Evaluator”
Better Business Bureau

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DISCLAIMER:  I am a patient and NOT a medical doctor or health care professional.  I share information and links to information that has been helpful to me and that I believe to be correct and good, but I cannot guarantee the accuracy of this information, except for MY stories.  I urge you not to rely only on this information but I believe you should discuss your situation and information with your medical doctors and/or other medical professionals.  "Sunny" Susan Anderson

Copyright © 1997-2017 Susan L. Anderson. All Rights Reserved.

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Last modified: 07/19/15