There is HOPE for those diagnosed with Carcinoid/NETS.

I've started my 23rd year of active, full life: May 10, 1995 -- May 10, 2017.

April 27, 2017 was the 20th anniversary of this page;
the FIRST by a Carcinoid patient.

April 23, 2014 I began Dialysis every evening at home
due to being Stage 5 Chronic Kidney Disease.

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My memoir book Becoming Sunny Susan is now available
in softcover and ebook! By Susan L. Anderson

NEW - Click on http://www.youtube.com/watch?v=sBZnPOGHf-8

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My story is one many of you can identify with – an uplifting look at a life that I am determined to live well, despite all the obstacles I have been dealt. At the heart of the story is the idea of LIVING with cancer. It took eight years to correctly diagnose my rare disease, Carcinoid/ Neuroendocrine Tumors. Then, they said I would die in just a few more years. That was 18 years ago, and here I am! How have I faired? Very well. Read the book to find out how I have lived a happy life, even with cancer.

Would you help to spread the positive word by telling your friends, by gifting the book, and by posting a review for other readers on the www.amazon.com page? We know how valuable a positive recommendation can be.

When I was diagnosed with Carcinoid Cancer May 10, 1995, besides my immediate research on the internet, I searched for books to purchase and read, plus friends brought me books that had helped them. Over the next several months I read about 100 books, and also listened to books on tape. I have now revised and shortening the very long list that I have had posted on my web page for years, and have removed some of the books I have read, but do not feel they were or are beneficial to someone, or the families of someone, dealing with Carcinoid. I shall list what I highly recommend first and then go from there. I have included a small amount of information, just before audio tapes, on Breast cancer, Thyroid problems, and Type 2 Diabetes.

What books were most useful to me when first diagnosed, and some are reference books I like having in my home library - some have been updated since I first read then. Sunny Susan

Everyone's Guide to Cancer Therapy: How Cancer Is Diagnosed, Treated and Managed Day to Day, 2nd Edition, copyright 1994, ISBN 0-8352-2427-2, $19.95 softcover, 714 pages, by Malin Dollinger, M.D., Ernest H. Rosenbaum, M.D. and Greg Cable – the FIRST book all should read, in my opinion, Susan

The Alpha Book on Cancer and Living: For Patients, Family and Friends by The Alpha Institute, P.O. Box 2463, Alameda, CA 94501 (1-800- 866-4111), copyright 1993, 486 pages. ISBN 0-9632360- 0-8, softcover $16.95

50 Essential Things To Do When The Doctor Says It's Cancer by Greg Anderson

The Activist Cancer Patient: How to Take Charge of Your Treatment by Beverly Zakarian

I Can Cope: Staying Healthy With Cancer by Judi Johnson, R.N., Ph.D. and Linda Klein (Judi is co-founder of the American Cancer Society "I Can Cope" Program)

Mildred “Millie” Kowalski, of Novartis Oncology announced at the Carcinoid Conference, in New Orleans, 9/22/2012 that I, Susan Anderson, am the recipient of the 2012 Warner Advocacy Award. I was sorry that we were unable to attend. I am honored and thrilled to receive this very meaningful award! Dr. Richard R. W. Warner, at my request, accepted this award on my behalf.

http://warneradvocacyaward.com/patient/current-warner-award-winner-2012.jsp

THE 2012 WARNER ADVOCACY AWARD WINNER "SUNNY" SUSAN L. ANDERSON

SHINING A LIGHT ON CARCINOID/NETS THROUGH EDUCATION, SUPPORT, AND A PASSION FOR LIFE

Susan L. Anderson, or "Sunny" Susan as she's affectionately known, has dedicated her life to people affected by carcinoid/neuroendocrine tumors (NETs) and has become an energetic advocate for, and educator of, the disease. Her journey began on May 10, 1995, when she was diagnosed with carcinoid cancer after an 8-year-long battle through one misdiagnosis after another.

Susan immediately began researching the disease and soon learned there wasn't much information available about NETs. Many doctors believed patients with NETs had a short time to live. Born with a self-proclaimed "type A" personality, Susan refused to accept the supposed facts. She says, "I was told by every doctor to 'learn to live with it.' Probably the average person would accept that. I refused to and because of that I'm still alive."

Through her research, Susan discovered Monica Warner's website for the Carcinoid Cancer Foundation. From that moment on, Susan Anderson, Monica Warner, and Dr. Richard Warner formed a team determined to bring attention to this uncommon disease and advocated tirelessly for patients everywhere.

Recognizing the need for greater patient support, Susan created the first website about NETs by a patient, which celebrates its 15th anniversary this year. The site, carcinoidinfo.info, continues its success in assisting people affected by the disease, and has more than 380,000 visitors. In addition to this "labor of love," Susan has dedicated her time to personally answering more than 100,000 e-mails, assisting patients and caregivers from around the world. Susan's in-depth relationships within the carcinoid/NET community even allow her to refer international patients to support groups in their respective countries.

Susan has attended numerous conferences throughout the world as a guest speaker, including the first International Meeting of Patient Self-Help Groups in Berlin, Germany. One of her fondest memories is from 2009, when Dr. Richard Warner invited Susan to take part in a 12-person panel of patients with carcinoid cancer at the Patient Support Advisory Board meeting in New York. When not attending conferences, Susan participates in many boards and support groups, some of which she has founded.

"Sunny" Susan has her nickname for a reason. Each step of her journey has been accompanied by unwavering optimism, determined energy, and an incredible zest for life. It makes sense that her daily goals are to "have some good 'belly laughs,' assist others, and live each day to its fullest enjoying each and every one."

Susan is honored to share recognition alongside the late Monica Warner, the pioneer of Patient Advocacy for NET patients who was also a dear friend. The recognition also extends to amazing patient advocates everywhere, including Maryann Wahmann and Jan Naritomi-Hart, the 2010 and 2011 Warner Advocacy Award recipients, respectively.

Please visit the Warner Advocacy Award Guest Book and leave a message congratulating our 2012 winner.

To learn more about the Warner Advocacy Award, click here.

Novartis Patient Advocacy

Novartis Oncology Affairs and Patient Advocacy provide support to patients through an array of programs and services

The NET Alliance

The NET Alliance is a Novartis Oncology initiative to help improve outcomes for patients with NETs

NEUROENDOCRIN/CARCINOID CANCER

Carcinoid A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

Sunny Susan Anderson's Home Library of

Cancer / Health / Healing / Wellness / Medical Books

THE 2012 WARNER ADVOCACY AWARD WINNER "SUNNY" SUSAN L. ANDERSON

SHINING A LIGHT ON CARCINOID/NETS THROUGH EDUCATION, SUPPORT, AND A PASSION FOR LIFE

Novartis Patient Advocacy

The NET Alliance

Send mail to SunnySusan@cox.net with questions or comments about this web site.
Copyright © 1997-2014 Susan L. Anderson. All Rights Reserved.
Last modified: 07/19/15

NEUROENDOCRIN/CARCINOID CANCER

Carcinoid A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

Sunny Susan Anderson's Home Library of

Cancer / Health / Healing / Wellness / Medical Books

THE 2012 WARNER ADVOCACY AWARD WINNER "SUNNY" SUSAN L. ANDERSON

SHINING A LIGHT ON CARCINOID/NETS THROUGH EDUCATION, SUPPORT, AND A PASSION FOR LIFE

Novartis Patient Advocacy

The NET Alliance

Send mail to SunnySusan@cox.net with questions or comments about this web site. Copyright © 1997-2014 Susan L. Anderson. All Rights Reserved. Last modified: 07/19/15

Send mail to SunnySusan@cox.net with questions or comments about this web site.
Copyright © 1997-2014 Susan L. Anderson. All Rights Reserved.
Last modified: 07/19/15