|
| |
If you are
starting a support group in your area and
would like to be listed,
please let me know.
PLEASE let me know of changes.
Sunny Susan at:
SunnySusan@Cox.Net
Updated: 27 April 2017
******************
27 April 2017 this web site was 20 years old, the 1st by a Carcinoid
patient!
********************
There is
HOPE for those diagnosed with
Carcinoid/NETS.
I've started
my 23rd year of active, full life: May 10, 1995 -- May
10, 2017.
April 27, 2017 was the 20th anniversary of this page;
the FIRST by a Carcinoid patient.
********************
April 23, 2014
I began Dialysis
every evening at home
due to being Stage
5
Chronic Kidney Disease.
*******************
My memoir book
Becoming Sunny
Susan
is now available
in
softcover and
ebook! By Susan L.
Anderson
NEW -
Click on
http://www.youtube.com/watch?v=sBZnPOGHf-8
to view the
90 second book trailer video from
YouTube!
My story is
one many of you can identify with – an uplifting look at a life that I am
determined to live well, despite all the obstacles I have been dealt. At the
heart of the story is the idea of LIVING with cancer. It took eight years to
correctly diagnose my rare disease, Carcinoid/ Neuroendocrine Tumors. Then, they
said I would die in just a few more years. That was 18 years ago, and here I am!
How have I faired? Very well. Read the book to find out how I have lived a happy
life, even with cancer.
Would you help
to spread the positive word by telling your friends, by gifting the book, and by
posting a review for other readers on the
www.amazon.com page? We know how valuable a positive recommendation can be.
* * * * * * * * * * * *
IF you do not find what your are looking for
here, please visit the web site of the
Carcinoid Cancer Foundation, Inc. at
http://www.carcinoid.org
Please hit "reload", "refresh"
or curved arrow back for the latest version,
as with all
sections of this web
page and others, thank you.
* * * * * * * * * * * *
LOCAL CARCINOID & NEUROENDOCRINE
SUPPORT GROUPS
ALABAMA
The Gulf Coast Net Support Group.
Meeting from noon to 2 p.m. quarterly on a Saturday, lunch usually
provided.
Meeting in waiting room of Cancer Surgery of Mobile.
Contact: Michelle Cramblitt
Email:
michelle.cramblitt@infirmaryhealth.org
ARIZONA
ARIZONA CARCINOID TEAM (ACT)
Meet with others dealing with Carcinoid (themselves, or a
family
member) in a casual
informal setting. Please feel free to join us.
Meeting
every second Sat. of the month 1 to
3 p.m.
The Wellness Community of Central Phoenix
360 E. Palm Lane, Phoenix, AZ 85004-1531
Phone 602-712-1006 Park in the rear parking lot
For more information contact:
Sharon Miller at 602-316-8192 or Email her at
smiller870@juno.com
Carl J. Blomberg at 602-421-8961 or email at
info@azcanfoundation.com
Sad news.
Marilyn Schmitt Burke suffered an aneurysm in her head and entered the ICU on
Monday 8/10/2015
She passed away peacefully at 4:30 p.m., Wednesday 8/12/2015/
She was a
dear friend and traveling companion.
She was, and always will be, an angel.
Marilyn was our beloved friend, mentor,
cheerleader, and part of the heart and soul of the NET/Carcinoid community here
is Arizona as well as the rest of the world. She was the first voice many talked
to about this strange cancer that we have all found ourselves being diagnosed
with. Her and Rick's support, knowledge and continued love and encouragement to
"SEE A SPECIALIST"
ARKANSAS
Carcinoid One on One
A support group for those dealing with carcinoid, their family, friends,
and
caregivers.
Meets at 11 a.m. on Thursdays at the Mercy Cancer
Center in Hot
Springs, AR.
Contact for additional information:
Terri Wright, 501-760-2099 or Email:
terris12@sbcglobal.net
CALIFORNIA
SEA (Support, Educate & Awareness for Carcinoid
Patients)
South - San Diego
Contact: Jan Naritomi-Hart
Email: jnaritomihart@sbcglobal.net
CALIFORNIA
CARCINOID FIGHTERS (CalCF) South Bay (Los Angeles)
Meeting the
first Saturday of every month,
10:30 a.m. until
12:30 p.m..
The Wellness Community- So . Bay Cities, 109 West Torrance Blvd., Redondo
Beach, CA 90277
Spouses, friends, family, caregivers, etc. all invited.
If interested in joining or for further information please email:
Pat Gerenday Email: carcinoidfighter@yahoo.com
or
Bisc Deeniham Email: bisc13@aol.com
Los Angeles Carcinoid Neuroendocrine Tumor Support
(LACNETS)
This new group meets the 4th Thursday of each month from 12:00 noon to 2:00
pm.
Parking is validated in lots 1, 2, and 6. A complimentary light lunch is
served.
The format of each meeting is a guest speaker followed by Q & A and group
sharing.
There is no December meeting and the group will resume meetings in January
2014
on the 4th Thursday.
The group is co-facilitated by Cynthia Coffelt, LSCW, MPH and Hong Zhou, NP.
Samuel Oschin Cancer Center, Cedars Medical Center
8700 Beverly Boulevard, os Angeles, CA 90048
Contact: Giovanna Imbesi, el: 310-399-2800
Kaiser Carcinoid Support Group
Group for all carcinoid patients, families, friends, caregivers who seek
increased
awareness,
education and support about Carcinoid cancer. Meeting the second
Saturday
of each month
from 1 to 4 p.m. Kaiser Permanente Medical Center.
1600 Eureka Blvd. MOB D
-- 3rd Floor,
meeting room 1, Roseville, CA 95661.
NORTHERN
CALIFORNIA CARCINOID NEUROENDOCRINE SUPPORT GROUP
(NorCal CarciNET -- NCCN)
Mission is to
help those with carcinoid and other neuroendocrine tumors to share
challenges
and
experiences, learn about prognosis and treatments, find information,
and improve
communications
between the medical community and patients.
First met Nov. 3, 2007 at the
Wellness Community.
Meetings held the first Saturday of every month (effective June 2011) from
1 to
4 p.m. at the
Cancer Support Community, 3276 McNutt Avenue, Walnut Creek,
CA
Website
www.norcalcarcinet.org
Contact: Josh Mailman Email:
contact@norcalcarcinet.org
NORTHERN CALIFORNIA NEUROENDOCRINE CANCER FIGHTERS (NCNCF)
A support group for survivors of Carcinoid, Pancreatic Islet cell, and related
neuroendocrine cancers and
for their caregivers, family and friends. The
group
serves all of Northern California. The informal meetings
provide an opportunity
to gather for fellowship, sharing of experiences, support and information.
Meets every month, second Saturday of the month, 1 p.m. to 4 p.m.
Meeting
locations:
Odd-numbered months: O'Connor Hospital, 2105 Forest Ave., San Jose,
CA 95218
Even-numbered months: 1775 Nephi Drive, Fairfield, CA 94533
The group also has an e-list. To join it go to:
NCNCF-subscribe@yahoogroups.com &
http://health.groups.yahoo.com/group/NCNCF/
Posts include meeting announcements and communication among group members.
Contact person: Katherine Arbanasin
karbanis@yahoo.com
OLORADO
Colorado Carcinoid Cancer Support Group
A support/advocacy group that held their first meeting
April 27, 2008,
(in the Clubhouse of the Creekside Office
Complex), to share experiences and
information, to network, to educate
healthcare providers, and spread
public awareness of carcinoid/NETs.
Contact: Lesley Stabinsky Compton, PhD Email:
ronnierc1@msn.com
Web: http://www.cccsg.net/
CONNECTICUT
CONNECTICUT CARCINOID INITIATIVE (CCI)
A support/advocacy group started in 2004 to serve as a support group,
to share experiences and information,
to network, to educate healthcare providers and
spread public awareness.
Meetings are held bimonthly on
the second Saturday of
that month; Veterans' Home & Hospital, 287 West St.,
Rocky Hill, CT.
website:
http://www.ctcarcinoid.homestead.com
Contact person: Patricia Strong
Email: PStrongLaw@aol.com
Additional Connecticut support groups, also see New England
and Metro NY
Carcinoid Support Group (Under New York).
New England Carcinoid Connection, Inc. (NECC)
NECC is a non-profit organization with the sole purpose of providing awareness, education and support to the New England
Carcinoid/Neuroendocrine community. (The six New England states are:
CT, ME,
MA, NH, RI and VT). New England Carcinoid Connection,
P.O. Box 366282,
Boston, MA 02136-0024.
contacts: Anita O'Brien at
nitaobrien@comcast.net
Nancy Hawkins at
ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website:
http://www.carcinoid-newengland.org/
Delaware
Delaware Valley
Carcinoid & NET Connection
Their web site
http://www.phillycarcinoid.org/
Contact Suzi F. Garber at info@phillycarcinoid.org
DISTRICT OF COLUMBIA
Capital Area Carcinoid Survivors
(CACS)
A patient-run support group formed in September 2001 for DC, VA, MD,
and eastern USA. Patients, their families and friends meet monthly
on Saturday 10 a.m. to 12 noon at Life With Cancer Family Center
in Fairfax, Virginia For info call 703-255-0519
Contact:
Mitch Berger -
mitchmberger@msn.com
FLORIDA
Florida Carcinoid Support Group
An informal support group.
Contact Pam Powell of Orange City, FL, phone 386-775-2392 or
Email at:
prpowell@cfl.rr.com
GEORGIA
Metro Atlanta Carcinoid Awareness Group
(MACAG)
This Group was established in Nov. 2004.
It is intended as a communications
enabler for those
afflicted with
Carcinoid cancer who reside in the Metro
Atlanta
area of Georgia. Family members and oncologists are also welcome.
This group's mission is to increase carcinoid awareness within
the Metro
Atlanta
Area and the state of Georgia.
The group
utilizes the Yahoo Groups membership capability for group
communication.
Those
interested in joining the Group may send
an email request to
MACAG-owner@yahoogroups.com.
Informal
meetings are facilitated quarterly with dates, times, and locations
maintained on the group calendar.
Please contact
MACAG-owner@yahoogroups.com
Contacts: Mack Caudill Email:
jmcstc@aol.com
Michael Roseberg Email:
mr30022@yahoo.com
Patty Howard Email:
nphoward@tds.net ILLINOIS
Chicagoland Carcinoid Fighters
We provide a forum for Support, Education and Awareness of
Carcinoid Cancer.
Meetings are held the third Saturday of each month
at the Wellness House in Hinsdale,
IL,
10 a.m. to 12:30 p.m. For details about the
monthly meeting Kim Darrow. contact:
Kim Darrow Emil:
Kim_darrow@hotmail.com
web site at:
http://chicagolandcarcinoid.weebly.com/
INDIANA
Indy Carcinoid
Awareness Network (ICAN)
This is Indiana's only Carcinoid support group. 1st meeting was
July 19, 2008!
Place: The Wellness
Community of Central Indiana, 5150 West 71st Street,
Indianapolis, IN. We
are a support group
for those living with Carcinoid cancer and neuroendocrine tumors in the Central
Indiana region.
Open to patients, caregivers, friends and family.
Meetings: 3rd Saturday of each month from 10 am to 12 noon.
Group Leader: Kari Jones - Carcinoid Cancer Survivor
Email:
groupleader@indycarcinoid.org
Web site:
http://www.indycarcinoid.org/
Contact: Mary Mitchell-Dick Email:
groupleader@indycarcinoid.org
IOWA
Iowa Carcinoid Cancer Connection
Support group for Carcinoid cancer patients, their family, friends and
caregivers.
First formed in
February 2012. We are here to increase Carcinoid cancer awareness, provide
education, and support for
patients with Carcinoid cancer.
email
Jennifer Holm:
iowacarcinoid@yahoo.com
Web: http://iowacarcinoid.wordpress.com.2012/02/22/your-iowa-carcinoid-cancer-connection/
KANSAS
Kansas (see MISSOURI)
LOUISIANA
Louisiana Carcinoid / NET Patient Support Group (LANETS)
First meeting, Sun. June 14, 2009 at 3 p.m.,
Ochsner Medical Center - Kenner;
Medical Office Bldg.,
7th Floor Auditorium.
Contact: Susan and David Connick Email:
louisiana.nets@gmail.com
MAINE
New England Carcinoid Connection, Inc. (NECC)
NECC is a non-profit organization with the sole purpose of providing awareness,
education and support to
the New England
Carcinoid/Neuroendocrine community.
(The six New England states are: CT,
ME,
MA, NH, RI and VT).
New England Carcinoid Connection, P.O. Box 366282,
Boston,
MA 02136-0024,
Contact: Anita O'Brien at
nitaobrien@comcast.net
Contact:
Nancy Hawkins at logcabin89@gmail.com
Visit the website:
http://www.carcinoid-newengland.org/
MARYLAND
Capital Area Carcinoid Survivors
(CACS)
A patient-run support group formed in September 2001 for DC, VA, MD,
and eastern
USA. Patients, their
families and friends meet monthly
on second Saturday 10 a.m.
to 12 noon at Life With Cancer Family Center,
8411 Pennell Street, Fairfax, Virginia
For info call 703-255-0519
Contact: Mitch Berger -
mitchmberger@msn.com
MASSACHUSETTS
New England Carcinoid Connection, Inc. (NECC)
NECC is a non-profit organization with the sole purpose of providing awareness,
education and support to the New England
Carcinoid/Neuroendocrine community.
(The six New England states are: CT,
ME,
MA, NH, RI and VT).
New England Carcinoid Connection, P.O. Box 366282,
Boston, MA 02136-0024.
Meetings held usually on the third
Wednesday of the month at Needham Public
Library, 1139 Highland Avenue, Needham,
MA 02494.
Contacts:
Anita O'Brien Email:
nitaobrien@comcast.net
Nancy Hawkins Email:
logcabin89@gmail.co
Web:
http://www.carcinoid-newengland.org/
Carcinoid Cancer Support Group
The Lahey Clinic offers a number of support groups for patients with
cancer and their families. this
group meets on the fourth Tuesday of each month. Pre-registration is
requested.
Lahey Ckubucm 41 Mail Road 3 West Keriotis Conference Room, Burlington, MA 01805
Contact: Pam Reznick Email:
pamela.reznick@lahey.org
MICHIGAN
Michigan Carcinoid Group (MCG)
The main theme of this support group is: "Sharing Information,
Caring for Each
Other". MCG is a casual
group; all persons interested in Carcinoid or NETs are welcome.
Meetings
are held every other month.
Faith United Church of God, I-96 and Walker Ave., Grand Rapids, MI.
Contact Dave Vickery 616-450-0842 or 616-447-8550
Contact Dave Vickery Email: dave.vickery2008@gmail.com
MINNESOTA
Northwood NETs Support Group
Support group was formed in September 1999 as an informational and
educational
support
group for people with Carcinoid and NET cancers. Meeting at
Fairview-Ridges
Hospital in
Burnsville, MN, usually on the second Sunday of every other month (January,
March, May,
July, Sept., and Nov.) from 3 to 5 p.m. Members are from all over
Minnesota, North and
South Dakota, western Wisconsin and Northern Iowa.
Web: http://www.northwoodsnets.org/
Contact: Jan Jackson Email:
jaxon1248@gmail.com
MISSOURI
Heartland
Carcinoids & NETs Support Group
For carcinoid and net survivors and care givers in the Missouri, Kansas,
Nebraska,
Iowa, Oklahoma
and neighboring areas. Meetings are held in the Kansas City area
and St.
Louis area.
Email for group:
Heartland_Carcinoids@yahoo.com
Website:
http://www.heartlandcarcinoids.org/
Contact: Linda Hickam Email:
Mickam@sbcglobal.net
NEVADA
Southern Nevada Carcinoid/NETs Support
Group
Meets third Tuesday of every month at 11:00 a.m. at
The Caring Place,
4425 South Jones Blvd., Las Vegas, NV
Everyone welcome, contact Dal Anderson for more info
Contact Dale Anderson Email: dal_anderson@hotmail.com
NEW HAMPSHIRE
New England Carcinoid Connection, Inc. (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness,
education and support to the New England
Carcinoid/Neuroendocrine community.
(The six New England states are: CT, ME,
MA, NH, RI and VT).
New England Carcinoid
Connection, P.O. Box 366282, Boston, MA 02136-0024,
contacts:
Anita O'Brien at Email:
nitaobrien@comcast.net
Nancy Hawkins at Email:
logcabin98@gmail.com
Visit the website:
http://www.carcinoid-newengland.org/
NEW YORK / CONNECTICUT / NEW JERSEY (METRO AREA)
* * * * * * * * * *
NET NEWS, Vol
1, Issue 1, Winter-Spring 2006
Published by The Carcinoid
Cancer Foundation, Inc.
You can access this newsletter
from:
http://www.carcinoid.org/news/index.shtml
The
Carcinoid Cancer Foundation (CCF) has existed for close to forty years.
In 1997 it produced its first website which made available to the general
public and the medical community information about carcinoid and related
neuroendocrine cancers. The incidence of these rare cancers is 3 new cases
diagnosed per 100,000 people in the United States which equals approximately
8000 new cases per year. The philosophy of CCF has always been to
disseminate accurate, up-to-date information about diagnosis, treatment, and
surveillance options to maximize survival and quality of life for those
individuals suffering with these diseases. We strive as the multitude of
carcinoid/NET national and international experts have been doing (some for
decades) to find a cure. In the meantime we must focus on educating the
medical community to find the best diagnostic and treatment options
available. CCF has and is working closely with both US and international
medical experts and support groups. Many people may not be aware of all the
various activities in which the Carcinoid Cancer Foundation is involved.
This first newsletter enumerates CCF's role in patient advocacy, research,
and dissemination of medical information and gives a summary of
accomplishments in the year 2005 and plans for the year 2006.
Without your collaboration
our accomplishments could not have been possible.
New Jersey Carcinoid Cancer Network
(NJ-CCN)
The NJ
Carcinoid Cancer Network web site:
http://www.NJCarcinoidNetwork.org/
Meeting: Woodbridge Main Public Library, 1 George Frederick Plaza,
Woodbridge, NJ 07095
For more information contact:
Jim Weiveris 609-812-9294 or
Caring4Noids@aol.com
or Judy Golz mjmkgo@aol.com Metro NY Carcinoid Support Group
(MNYCSG)
This support group in the Metropolitan NY area includes Manhattan , NJ, Long
Island, Westchester
and part of Connecticut. If you are interested in
participating and to learn more about these
support groups contact the
coordinator for each chapter or for more information about the
Metro
NY
Carcinoid Support Group. The Metro NY Carcinoid Support Group
newsletters can
also be accessed on the group's web site.
Contact the MNYCSG tri-state
coordinator
Jim Weiveris
Caring4Noids@aol.com
Web site:
http://www.carcinoid.us/
Long Island Chapter
Carcinoid Cancer Awareness Network, Inc. (CCAN)
For more information about this support groups activities contact:
Maryann Wahman at
Carcinoidaware@aol.com
http://www.carcinoidawareness.org
New Jersey Carcinoid Cancer Network
(NJ-CCN)
The NJ
Carcinoid Cancer Network web site:
http://www.NJCarcinoidNetwork.org/
Meeting: Woodbridge Main Public Library, 1 George Frederick Plaza,
Woodbridge, NJ 07095
For more information contact:
Jim Weiveris 609-812-9294 or
Caring4Noids@aol.com
or Judy Golz mjmkgo@aol.com
NORTH CAROLINA
Noids in the Carolinas
Covering both North Carolina & South Carolina
Contact: Karen J. Connell, 910-545-7513
email:
NCZEBRAGIRL12@aol.com
Hampton Road VA Carcinoid/NET Support Group
An informative educational group focused on carcinoid and other
neuroendocrine
tumors and cancers, consists of individuals and organizations
from the patient,
advocacy, and medical communities throughout Hampton Roads,
which is also
known as Tidewater. Friends and family of patients with these
tumors and cancers
seeking support are encouraged to join.
Please contact:
HRVaCarcinoidGrp@yahoo.com for more information
OHIO
The Ohio Carcinoid Support Group meets monthly on the third Saturday of teach
month
in Westerville, Ohio (a northern suburb
of Columbus, Ohio). In addition to providing
support for carcinoid
patients and their carekeepers and giving everyone an opportunity
to speak about their concerns, each meeting has a speaker speaking on topics of
interest to
carcinoid patients.
Contact:
Jayne Beck, Columbus, OH, 614-847-1311
mstoast@msn.com
OREGON
PACIFIC NORTHWEST
CARCINOID SUPPORT GROUP (PNW) -
OREGON CHAPTER
For more information about this group contact:
Contact Corie Dean cadean@natpipe.com
or
Kari Brendtro
kbrendtro@yahoo.com
For more information about the PNW support group go to the
information for
Washington state.
PENNSYLVANIA
Hershey/Harrisburg
Pennsylvania Carcinoid Cancer Advocacy Network (PCCAN),
PCCAN provides support and education for carcinoid/ NET patients and their
advocates.
Most (but not all) meetings are held Sundays,
2 -- 4 pm at the Hershey Medical Center.
Be sure to confirm the time
and location at
http://www.pccan.net. Also
check our
website for information on carcinoid/NET related activities in or near
Pennsylvania.
Contact: Teresa Lanza, ph: 717-576-5095 or
CarcinoidSupport@juno.com or see web site
http://www.pccan.net
On-line communication and support group:
PCCAN-subscribe@yahoogroups.com.
Read about Tereza Lanza's commitment to educate the carcinoid community
Her Blog address is
http://www.blogger.com/profile/07975567130568769758
Lancaster and Pittsburgh area groups are also
now in development.
Check the PCCAN website for more information.
http://www.pccan.net
Lancaster Carcinoid/NETS Support Group
For more information contact: Susan Nolt
susan288@verizon.net
Delaware Valley Carcinoid
Connection
A
New Group Supporting Carcinoid and Neuroendocrine
Tumor Patients and Their
Advocates
First meeting
was held Jan. 20, 2008.
For meeting schedule and location visit their website
http://www.phillycarcinoid.org/
Contact Suzi F. Garber (Founder, patient and advocate) at
info@phillycarcinoid.org
RHODE ISLAND
New England Carcinoid Connection, Inc. (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness, education and support to the New England
Carcinoid/Neuroendocrine community. (The six New England states are: CT, ME,
MA, NH, RI and VT). New England Carcinoid
Connection, P.O. Box 366282, Boston, MA 02136-0024, contacts:
Anita O'Brien at
nitaobrien@comcast.net
Nancy Hawkins at
ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website:
http://www.carcinoid-newengland.org/
SOUTH CAROLINA
Noids in the Carolinas
Covering both North Carolina & South Carolina
Contact: Karen J. Connell,
NCZEBRAGIRL12@aol.com
Phone: 910-545-7513
TEXAS
Amarillo
Amarillo Area Carcinoid Support Group
New informal support group has formed.
First meeting was April 12, 2007
Contact: Lynda Barksdale
bronco75@earthlink.net
Austin
THE CENTEX
CARCINOID FIGHTERS
This support group meets on the fourth Saturday of even months, for those in the
Austin and
Central Texas area. For more information contact:
Jude Filler at: judefiller@hotmail.com or
Ann Meyer at: ameyer@swrcc.com
phone: 512-421-4120
at Southwest Regional Cancer Center
Dallas
CARCINOID CANCER TEXAS SUPPORT (CCTS)
A support group for people living with, affected by or interested in Carcinoid
Cancer, it's treatment and effects.
They offer support and education for
Carcinoid survivors, family and friends. Meet on the
second Saturday
of
every month from 11 a.m. to 1 p.m., Baylor Hospital, Dallas.
For information visit the web site
http://www.carcinoid-tx.org/home.htm or
contact Carol-Anne Wilson, Plano, TX or
carolanne52@gmail.com
Houston
Group meets quarterly.
If in the area and interested please contact
Jan Peine, email:
carcinoid@comcast.net
San Antonio
Meet on the fourth Saturday of the odd months (Jan., March, etc.) at the
Friends
Meetinghouse at 7052 Van Diver in San Antonio.
Contact Catherine Jett datchij@yahoo.com
West Texas
Midland, Odessa, Lubbock, Abilene, and San Angelo
Contact: Sarah Rees
sarahjanerees@yahoo.com
VERMONT
New England Carcinoid Connection, Inc. (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness, education and support to the New England
Carcinoid/Neuroendocrine
community. (The six New England states are:
CT, ME,
MA, NH, RI and VT).
New England Carcinoid
Connection, P.O. Box 366282, Boston, MA 02136-0024, contacts:
Anita O'Brien at
nitaobrien@comcast.net
Nancy Hawkins at
ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website:
http://www.carcinoid-newengland.org/
VIRGINIA
Capital Area Carcinoid Survivors
(CACS)
A patient-run support group formed in September 2001 for DC, VA, MD,
and eastern USA. Patients, their families and friends meet monthly
on Saturday 10 a.m. to 12 noon at Life With Cancer Family Center
in Fairfax, Virginia For info call 703-255-0519
Contact: Mitch Berger -
mitchmberger@msn.com
MidAtlantic
Carcinoid-NeuroEndocrine Tumor Association (MACNETA)
The MACNETA group is for patients with Carcinoid Cancer and/or
other Neuroendocrine
Tumors, family members, friends, physicians, and
other medical professionals. The group
is run by volunteers and has
ties with Dr. AI Vinik of the Eastern Virginia Medical School
Endocrine
Center, NET Physician Teams, and Sentara Healthcare System and
Physicians.
Support
meetings are
held the 3rd Sunday of every other month
at the main Public Health
Center located on Southampton Avenue in
Norfolk. It is adjacent to the combined buildings
of EVMS, Sentara
Norfolk General Hospital, and the Kings Daughters Hospital.
For more
information please contact:
Susie Miller
cw-susie1@cox.net;
Dina Bolshazy westie01@cox.net;
Susan Burke
sburke76@yahoo.com;
General Contact info@macneta.org
Hampton Road VA Carcinoid/NET Support Group
An informative educational group focused on carcinoid and other
neuroendocrine tumors and cancers,
consists of individuals and
organizations from the patient, advocacy, and medical communities
throughout
Hampton Roads, which is also known as Tidewater. Friends and
family of patients with these tumors and
cancers seeking support are
encouraged to join.
Please contact:
HRVaCarcinoidGrp@yahoo.com for more information
WASHINGTON
PACIFIC NORTH WEST CARCINOID SUPPORT GROUP
(PNW) -
This support group includes members from Vancouver, British Columbia,
Idaho,
Oregon,
Washington state and neighboring states or Canadian
provinces without a
support group.
Meeting are usually held twice a year
on a Saturday in Issaquah (east of
Seattle).
For additional information
please contact:
Corie Dean
cadean@natpipe.com
WASHINGTON, D.C.
Capital Area Carcinoid Survivors
(CACS)
A patient-run support group formed in September 2001 for DC, VA, MD,
and eastern USA. Patients, their families and friends meet monthly
on Saturday 10 a.m. to 12 noon at Life With Cancer Family Center
in Fairfax, Virginia For info call 703-255-0519
Bea Lehming -
blehming@gmail.com Mitch Berger -
mitchmberger@msn.com
********************
Mildred “Millie” Kowalski, of Novartis Oncology announced at the
Carcinoid Conference, in New Orleans, 9/22/2012 that I, Susan Anderson,
am the recipient of the 2012 Warner Advocacy Award. I was sorry that we
were unable to attend. I am honored and thrilled to receive this very
meaningful award! Dr. Richard R. W. Warner, at my request, accepted
this award on my behalf.
THE 2012 WARNER ADVOCACY AWARD WINNER
"SUNNY" SUSAN L. ANDERSON
SHINING A LIGHT ON CARCINOID/NETS THROUGH
EDUCATION, SUPPORT, AND A PASSION FOR LIFE
Susan L. Anderson, or "Sunny" Susan as she's
affectionately known, has dedicated her life to
people affected by carcinoid/neuroendocrine
tumors (NETs) and has become an energetic
advocate for, and educator of, the disease. Her
journey began on May 10, 1995, when she was
diagnosed with carcinoid cancer after an
8-year-long battle through one misdiagnosis
after another.
Susan immediately
began researching the disease and soon learned there
wasn't much information available about NETs. Many
doctors believed patients with NETs had a short time
to live. Born with a self-proclaimed "type A"
personality, Susan refused to accept the supposed
facts. She says, "I was told by every doctor to
'learn to live with it.' Probably the average person
would accept that. I refused to and because of that
I'm still alive."
Through her research,
Susan discovered Monica Warner's website for the
Carcinoid Cancer
Foundation. From that moment on, Susan Anderson,
Monica Warner, and Dr. Richard Warner formed a team
determined to bring attention to this uncommon
disease and advocated tirelessly for patients
everywhere.
Recognizing the need for greater patient support,
Susan created the first website about NETs by a
patient, which celebrates its 15th anniversary this
year. The site,
carcinoidinfo.info, continues its success in
assisting people affected by the disease, and has
more than 380,000 visitors. In addition to this
"labor of love," Susan has dedicated her time to
personally answering more than 100,000 e-mails,
assisting patients and caregivers from around the
world. Susan's in-depth relationships within the
carcinoid/NET community even allow her to refer
international patients to support groups in their
respective countries.
Susan has attended
numerous conferences throughout the world as a guest
speaker, including the first International Meeting
of Patient Self-Help Groups in Berlin, Germany. One
of her fondest memories is from 2009, when Dr.
Richard Warner invited Susan to take part in a
12-person panel of patients with carcinoid cancer at
the Patient Support Advisory Board meeting in New
York. When not attending conferences, Susan
participates in many boards and support groups, some
of which she has founded.
"Sunny" Susan has her nickname for a reason. Each
step of her journey has been accompanied by
unwavering optimism, determined energy, and an
incredible zest for life. It makes sense that her
daily goals are to "have some good 'belly laughs,'
assist others, and live each day to its fullest
enjoying each and every one."
Susan is honored to share recognition alongside
the late Monica Warner, the pioneer of Patient
Advocacy for NET patients who was also a dear
friend. The recognition also extends to amazing
patient advocates everywhere, including Maryann
Wahmann and Jan Naritomi-Hart, the 2010 and 2011
Warner Advocacy Award recipients, respectively.
Please visit the
Warner Advocacy Award Guest Book and leave a
message congratulating our 2012 winner.
To learn more about the Warner Advocacy Award,
click
here.
Novartis Patient Advocacy
Novartis Oncology Affairs and Patient Advocacy provide
support to patients through an array of programs and
services
read more
The NET Alliance
The NET Alliance is a Novartis Oncology initiative to
help improve outcomes for patients with NETs
read more
********************
AUSTRALIA
AUSTRALIA
AUSTRALIA
AUSTRALIA
Become a Friend of the Unicorn Foundation (
http://
Launched February 2010 - Our New Website -http//
See our new patient support groups in both
NSW & ACT
Sydney Neuroendocrine Tumour (NET) Educational/Support
Group Meeting
Neuroendocrine tumour (NET) and carcinoid
patients, carers and interested clinicians are
invited to come and learn about the latest happenings in the
management of NETs
and to share their experiences at our new Sydney
education/support group. All welcome!
Topic - Recent Research in NETs
Speaker - Dr Anthony Chambers, Endocrine Surgeon
Dr Chambers has recently returned from Canada after completing a
surgical fellowship in
Calgary with some of the top doctors in NET management. He is
now working back in Sydney
at St Vincent's Hospital, Darlinghurst and will be presenting to
us on recent and new research in NETs.
-
Update on
Eric. The latest and the greatest
Eric has been diagnosed and treated for a rare form of
cancer-
Carcinoid Cancer. The saga on this site chronicles his
journey from the day when his enlarged liver was identified
at ultrasound when investigating for a possible gall stone.
It turned out to be one heck of a gall stone!
|
|
Check the web site of Eric for information:
http://www.moonhaven.com.au/eric.htm
and
Carcinoid Tumour
Forum Australia http://carcinoid.tblog.com
Sydney Neuroendocrine
Tumour (NET) Educational/Support Group Meeting
Neuroendocrine tumour (NET) and carcinoid patients, carers and
interested clinicians are
invited to come and learn about the latest happenings in the
management of NETs
and to share their experiences at our new Sydney
education/support group. All welcome!
Topic - Recent Research in NETs
Speaker - Dr Anthony Chambers, Endocrine Surgeon
Dr Chambers has recently returned from Canada after completing a
surgical fellowship in
Calgary with some of the top doctors in NET management. He is
now working back in Sydney
at St Vincent's Hospital, Darlinghurst and will be presenting to
us on recent and new research in NETs.
AUSTRIA
AUSTRIA AUSTRIA
AUSTRIA
Netzwerk Neuroendokrine Tumoren (NeT) e. V.
is a big patient group for
patients with NET,
for their relations and for practitioners. It is growing every day. In this
moment we have
600 members. We are very acitve in Germany, Austria
and Switzerland.
The address of our website is
www.netzwerk-net.de
Best regards:
Katharina Mellar
1. Vorsitzende
Netzwerk
Neuroendokrine Tumoren (NeT) e. V.
Geschäftsstelle:
Netzwerk Neuroendokrine Tumoren (NeT) e. V.
Wörnitzstr. 115a
90449 Nürnberg
Tel. 0911 / 25 28 999
Fax 0911 / 2 55 22 54
Email: info@netzwerk-net.de
web site:
www.netzwerk-net.de
CANADA CANADA CANADA CANADA
The Carcinoid -Neuroendocrine Tumour Society Canada (CNETS CANADA)
This was first organized in October 2002
as The Canadian Carcinoid Cancer and NET
Support Team (CCCNST)
CNETS-Canada
To all Carcinoid fighters, their support persons who live in Canada, and in
areas near the border, including Upper New York State, as well as any passing
through; this support group gives an opportunity for fellowship, round table
discussions, and information sessions regarding Carcinoid.
For information about our next support group meeting please email:
Maureen Coleman at
maureenc@sympatico.ca
To join Canadian discussion group
Carcinoid-NETS-Canada
A Listser/Website dedicated for Canadians and their Neuroendocrine System
illnesses
To Join CLICK
HERE .
For information please contact:
Maureen Coleman, Toronto, Ontario, 416-544-8467
or email at: maureen@sympatico.ca
web site:
www.cnetscanada.org
We are the Carcinoid-Neuroendocrine Tumour
Society-Canada Everyone in Canada,
and nearby border US states, who is a
Carcinoid-Neuroendocrine Patient and /or significant
other, and/or special
friend or family member is welcome to become part of their local
Carcinoid-Nets
Support Group. We aim to listen, educate, advocate, support, and also enjoy
one
another’s company.
There is an on-line group for Canadians and some interested Americans.
carcinoidnetscanada@yahoogroups.ca
May 13-16, 2010,
Vancouver International CNETS Canada Conference for patients and med
professionals. NEW
The Vancouver Conference tentative
program is now on the CNETS Canada website
http://www.cnetscanada.org/
This program will be instrumental in
moving the needs of the International Carcinoid NET patient community forward.
And we would love to see you in Vancouver. It is a really great place as the
Winter Olympics will demonstrate.
We feel that our program is 90%
complete. We will add more information as we get it.
So please register for the Vancouver
International Conference online at
www.cnetscanada.org.
We can also help you register offline if you like.
Please just email
info@cnetscanada.org with questions or if you need help.
Dates are May 13-16, 2010.
Please go to
www.cnetscanada.org and register for the conference.
We only have room for a total of 370 people including faculty so you
may want to register before all the spaces are gone.
A number of people actually booked before this programme came out
and we thank you for your trust in our ability to generate an effective
conference.
Maureen Coleman, President, CNETS
Canada
ATLANTIC PROVINCES
New Brunswick
Carcinoid-Nets Support Group
Please contact
Newfoundland
Carcinoid-Nets Support Group
Please contact
Nova Scotia and Prince Edward Island Carcinoid-Nets Support Group
Please contact Colette Morrison
physio@ns.sympatico.ca
(902) 295-2955
QUEBEC
Montreal Area Carcinoid-Nets Support Group.
Please contact Nycky Thevenet
nyckyschon@yahoo.com (514) 425-1734
ONTARIO
Toronto Area Carcinoid-Nets
Support Group
Please contact Maureen Coleman
maureenc@sympatico.ca,
(416)-544-8467
Please contact Noreen Lebowitz
lebo74@rogers.com (905)-731-8598
London-Kitchener-Western Ontario
Carcinoid-Nets Support Group.
Please contact
Ottawa-Eastern Ontario Carcinoid-Nets Support Group
Please contact Morley Dore
barbandmorley@rogers.com (613) 725-3229
MANITOBA
Winnipeg Area Carcinoid-Nets
Support Group
Please contact Silvia Steinhilber
nswplas@mts.net (204)-757-4878
SASKATCHEWAN
Regina-Moose Jaw-Saskatoon Area
Carcinoid-Nets Support Group
Please Contact Marlis Duff
duff.marlis@prairiesouth.ca (306)-475-2838
Please contact Lynne Warden
lynnemwarden@msn.com (306)-664-3419
ALBERTA
Calgary Area Carcinoid-Nets Support group
Please contact Joan Smart
smartj@telus.net (403)-233-2031
BRITISH COLUMBIA
Kamloops Area Carcinoid-Nets Support Group
Please contact Dennis Robertson
crackersdog@hotmail.com
Phone TTY is 250-274-7477
Vancouver Area Carcinoid-Nets Support Group
Please contact
GERMANY
GERMANY
GERMANY
GERMANY
Netzwerk Neuroendokrine Tumoren (NeT) e. V.
is a big patient group for
patients with NET,
for their relations and for practitioners. It is growing every day. In this
moment we have
600 members. We are very acitve in Germany, Austria
and Switzerland.
The address of our website is
www.netzwerk-net.de
Best regards:
Katharina Mellar
1. Vorsitzende
Netzwerk
Neuroendokrine Tumoren (NeT) e. V.
Geschäftsstelle:
Netzwerk Neuroendokrine Tumoren (NeT) e. V.
Wörnitzstr. 115a
90449 Nürnberg
Tel. 0911 / 25 28 999
Fax 0911 / 2 55 22 54
Email: info@netzwerk-net.de
web site:
www.netzwerk-net.de
Netherlands
Netherlands Netherlands
Netherlands
Dutch Carcinoid Support Group
This group is a section of the "Stichting Doorgang" for cancers of the
gastrointestinal track.
For additional information please contact:Teun Elemans
tn@EURONET.NL or visit the web site
http://www.kankerpatient.nl/doorgang/
( Note: this web site is in Dutch)
NORWAY
CarciNor (the Carcinoid patients association in Norway) aims to act as
a support for patients
suffering from hormone producing tumors in the stomach,
such as carcinoids, endocrine pancreatic
tumors, adrenocortical cancer, etc.
The association also works to spread information about these
diseases
treatments, research methods and other matters of interest. CarciNor is
affiliated to
The Norwegian Cancer Society.
(Note: Information is presently only
available in Norwegian)
Email contact for information:
carcinor@kreftforeningen.no
POLAND
Carcinoid Patients Organization in
Poland
http://www.rakowiak.pl/
|
Mamy przyjemność poinformować, że 19
września 2005 roku zostało zarejestrowane
"Stowarzyszenie
Pacjentów i Osób Wspierających Chorych na Guzy Neuroendokrynne".
Wśród jego członków znalazły się osoby chore na te rzadkie
guzy, a także członkowie
ich rodzin oraz bliscy.Pojęcie <Guzy
neuroendokrynne GEP-NET> obejmuje
kilkanaście typów guzów
nowotworowych od łagodnych po formy wysoce złośliwe.
Najbardziej
znaną jednostką chorobową jest "rakowiak". Guzy tego typu to
wciąż
jeszcze mało znany problem medyczny w Polsce.
18 listopada 2005 roku o godzinie 9.30 w Hotelu Hyatt w
Warszawie odbyła się
sesja edukacyjna dla członków
Stowarzyszenia. Byli na niej obecni pacjenci i ich r
odziny z
różnych stron Polski. Podczas spotkania dyskutowaliśmy o
działaniach, które
chcielibyśmy zrealizować oraz o najbardziej
palących problemach, jakim muszą
stawiać czoło chorzy na guzy
neuroendokrynne. |
|
SWEDEN
CARCINOID PATIENTS ASSOCIATION (CARPA)
in Sweden.
This site contains many important carcinoid disease related articles
by
Professor Kjell Öberg and research team, in both Swedish and English.
Carpa vidarebefodrar frågor till Sektionen för Endokrinologisk Onkologi i
Uppsala. Carpa forwards questions of medical character to the Section of
Endocrine Oncology in Uppsala
|
SWITZERLAND
SWITZERLAND SWITZERLAND
NEW - Netzwerk Neuroendokrine Tumoren (NeT) e. V.
is a big -
patient group for patients with NET, for their relations and for
practitioners. It is growing every day. In this moment we have
600 members. We are very acitve in Germany, Austria and
Switzerland.
The address of our website is
www.netzwerk-net.de
Best regards:
Katharina Mellar
1. Vorsitzende
Netzwerk Neuroendokrine Tumoren (NeT) e. V.
Geschäftsstelle:
Netzwerk Neuroendokrine Tumoren (NeT) e. V.
Wörnitzstr. 115a
90449 Nürnberg
Tel. 0911 / 25 28 999
Fax 0911 / 2 55 22 54
Email: info@netzwerk-net.de
web site:
www.netzwerk-net.de
|
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United Kingdom
NEW in the United Kingdom (May
9, 2006)
NET Patient Foundation incorporating Living With Carcinoid
www.netpatientfoundation.com.
AMEND (Association for Multiple Endocrine
Disorders)
Multiple Endocrine Neoplasia
(MEN1 and MEN2) support group whose mission is to help
and support people with this rare condition. Visit their web sites, click on the
blue underlined names above. For more information contact:
Liz Dent at Liz.Dent@amend.org.uk
or
Clare Goldsmith at
claregoldsmith@hotmail.com
===========
Local support
groups with a web site and/or communication via email
NORTHERN CALIFORNIA
NEUROENDOCRINE CANCER FIGHTERS (NCNCF)The
group also has an e-list. To join it go to:
NCNCF-subscribe@yahoogroups.com & http://health.groups.yahoo.com/group/NCNCF/
NORTHERN CALIFORNIA
CARCINOID NEUROENDOCRINE SUPPORT GROUP
NorCal CarciNet – (NCCN)
An affiliate of Calif. Carcinoid Fighters - (CALCF)
Web:
www.carcinoid-net.org
CONNECTICUT CARCINOID INITIATIVE (CCI)
website:
http://www.ctcarcinoid.homestead.com
New
England Carcinoid Connection, Inc. (NECC)
Visit the website:
http://www.carcinoid-newengland.org/
Capital Area Carcinoid Survivors (CACS)
http://members.cox.net/cacsva/index.htm
Florida
Carcinoid Support Group
Web site:
Metro Atlanta Carcinoid Awareness Group (MACAG)
http://groups.yahoo.com/group/MACAG
Chicagoland Carcinoid Fighters
web site at:
http://www.freewebs.com/chicagocarcinoid/
BOSTON
CARCINOID SUPPORT GROUP
http://research.dfci.harvard.edu/neuroendocrine/
Michigan
Carcinoid Support Group
Metro NY Carcinoid Support Group
(MNYCSG)
Web site:
http://www.carcinoid.us/
Carcinoid Cancer
Awareness Network, Inc. (CCAN)
http://www.carcinoidawareness.org
MidAtlantic Carcinoid-NeuroEndocrine Tumor Association (MACNETA)
MACNETA-subscribe@yahoogroups.com
Pennsylvania
Carcinoid Cancer Advocacy Network (PCCAN),
PCCAN-subscribe@yahoogroups.com
Delaware
Valley Carcinoid Connection
http://www.phillycarcinoid.org/Home_Page.html
CARCINOID CANCER TEXAS SUPPORT (CCTS)
http://www.carcinoid-tx.org/home.htm
MidAtlantic
Carcinoid-NeuroEndocrine Tumor Association (MACNETA)
info@macneta.org
There
is an on-line group for Canadians and some interested Americans.
carcinoidnetscanada@yahoogroups.ca
CarciNor (the Carcinoid patients association in Norway)
Carcinoid Patients Organization in Poland
http://www.rakowiak.pl/
CARCINOID
PATIENTS ASSOCIATION (CARPA)
in Sweden.
NET Patient Foundation
incorporating Living With Carcinoid (in the UK)
www.netpatientfoundation.com
Carcinoid-Neuroendocrine Tumour Society-Canada (CNETS)
www.cnetscanada.org
+ + + + + + + + + + + + + + + +
California Carcinoid Fighters -- Board of Directors
Click on image to see a larger picture of the CalCF
Board of Directors.
November 2001
Stephen Pazan, President
Nik Neville, Publicity
Morris Bialick, Treasurer
Susan Anderson, Board Member
Terry Wright, Secretary
|
May 4, 2002
Stephen Pazan, President
Morris Bialick, Treasurer
Nik Neville, Publicity
Terry Wright, Secretary
Dr. Eugene Woltering, (Medical Advisor)
Susan Anderson, (Arizona representative)
|
Oct. 2003
Susan Anderson, Board Member
Pat Gerenday, Secretary
Stephen Pazan, President
Morris Bialick, Treasurer
|
Oct. 2003
Dr. Eugene Woltering
Medical Advisor
|
The Mission Statement for the newly
formed group (Sept. 2004):
To create an alliance, to offer
resources, and to facilitate the efforts of
Carcinoid
and other Neuroendocrine Tumor (NET)
support groups, patients,
and caregivers in North America
From Left to Right: NAAPNET Steering
Committee 2004 - 2005
Susan Anderson ..... Arizona ..... Vice Chair (Resigned June 15, 2005)
Carol-Anne Wilson ..... Texas ..... Chair
Jim Weiveris ..... New Jersey ..... Secretary
Linda Silversmith ..... Maryland ..... Treasurer
Cynthia Marrs ..... Oregon ..... Member (on leave of absence)
CALIFORNIA CARCINOID FIGHTERS SEMINAR 2003:
CARCINOID TREATMENT TODAY AND TOMORROW
For Carcinoid patients, family, friends and medical
professionals
Saturday October 25, 2003
7:00AM-4:30PM
Doubletree Hotel Santa Ana/Orange County Airport
201 East MacArthur Boulevard, Santa Ana, CA 92707
Meet six of the world's leading clinicians
and researchers on carcinoid and neuro-endocrine
tumors
Speakers starting at 8 AM:
Larry Kvols M.D.
Kjell Öberg M.D.
Thomas O'Dorisio M.D.
Rodney Pommier M.D.
Richard Warner M.D.
Eugene Woltering M.D.
Registration and Breakfast at 7 AM -- Lunch Included
Friday October 24 from 6:00 - 10:00 PM: pre-registration check-in
and informal networking
Registration is payable by check or money
order and will be accepted in the order received.
FOR COPY OF REGISTRATION FORM CLICK HERE For hotel reservations:
call the Doubletree Registration #1-800-222-8733 or 1-714-825-8733
or register online: click here
Doubletree Online Registration (group/convention code is CAR)
Mention the "Carcinoid Seminar" for the special room rate and to
request "special needs".
Coordinated by California Carcinoid Fighters (CalCF)
Underwritten through a generous grant from Novartis Oncology
For more information visit the CalCF website
http://www.sccfighters.org
or contactt Tom May of The Wellness Community-South Bay Cities
1-310-376-3550 extension 22
============================================
CALIFORNIA CARCINOID FIGHTERS SEMINAR 2003
Saturday October 25, 2003
MAIL the completed registration form below with your check or money
order, $25 per person,
made payable to “California Carcinoid Fighters Seminar 2003” to:
California Carcinoid Fighters, PMB # 231, 17939 Chatsworth Street, Granada
Hills, CA 91344-5606
PLEASE PRINT YOUR INFORMATION BELOW:
Name ________________________________________________________
Address ______________________________________________________
City ____________________________ State _____ Zip _______________
Phone number _________________________________________________
Spouse/Caregiver’s Name ________________________________________
Number attending conference: ________________
E-mail Address: ________________________
Do you wish to include your Email address on registration roster? Yes____
No____
Will you attend an Informal WELCOME RECEPTION, Friday night (Oct. 24, 2003)
at the hotel? Yes__ No __
Confirmation of receipt for registration will be made via mail or e-mail.
Those wishing overnight accommodations must call the Doubletree Hotel
1-714-825-3333 or 1-800-222-8733
Mention the "Carcinoid Seminar" for special room rate and request "special
needs"
For on-line registration for the Doubletree Hotel CLICK HERE
For additional information contact Tom May of The Wellness Community-South
Bay Cities
1-310-376-3550 extension 22
Doubletree Hotel Map and Information CLICK HERE
**********
Please read last section on this page - below.
Thank you, Susan, 1-26-2009
Since
1996 --- when I first located others with
Carcinoid --- I have answered every email sent to me,
although some replies were
delayed longer than I liked. I am NO longer able to reply to all e-mails due to
the volume and other things going on in my life (all good). I do love hearing
from others, but an unable
to reply to all individually. I shall not forget my
many Carcinoid friends and of course shall reply to you …
as time permits.
This web site was 20 years old on April 27, 2017.
Since my husband "retired"
I am away from my computer for days, and sometimes, weeks at a time. Yes, there
is wireless internet and we have tried that a number of places. But, if I deal
with email when we are away from home then it is not a "restful vacation" for
me.
PLEASE
use the SEARCH
capability at the top my pages. You may search for a word, a phrase, a drug, a
treatment, a book title or anything you can think of. You may search this site
only, or search the complete World Wide Web.
To speak with
a person
please know you may call the “telephone information and support line” of the
Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4
p.m. Eastern Time at 1-888-722-3132 (free) or 1-914-693-1001. “The
information and support line” is staffed by medical professionals. Mondays and
Fridays are research days, if you call then and do not reach a person do leave a
clear message. The Carcinoid Cancer Foundation’s (CCF) superb web site is at
http://www.carcinoid.org
CCF - Serving
the carcinoid/NETs patient and medical community for
more than forty
years (chartered in 1968)
“Meets Extensive Standards of America’s
Most Experienced Charity Evaluator”
Better Business Bureau
* * * * * * * * * * *
*
DISCLAIMER:
I am a patient and
NOT a medical doctor or health care professional. I share information and
links to information that has been helpful to me and that I believe to be
correct and good, but I cannot guarantee the accuracy of this information,
except for MY stories. I urge you not to rely only on this information
but I believe you should discuss your situation and information with your
medical doctors and/or other medical professionals.
"Sunny" Susan Anderson
Copyright © 1997-2017 Susan L. Anderson. All Rights
Reserved.
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